Harris Insights & Analytics LLC, A Stagwell Company
ASCO 2020 Cancer
Opinions Survey
2020 Key subjects: COVID-19 and Cancer Care, Health
Inequities in Cancer Care, Clinical Trial Myths, Key Trends
September 2020
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Table of Contents
Page
Research Methodology
3
Report Notes
4
Key Findings
5
Detailed Findings
10
COVID-19 and Cancer Care 11
Inequities in Cancer Care 19
Clinical Trial Myths 25
Demographics
29
Cancer Profiles
34
Appendix
38
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Research Methodology
Mode:
Online survey
Length:
20 Minutes
Qualification Criteria:
General Population
• US residents
• Age 18+
Cancer Patients
• US residents
• Age 18+
• Ever diagnosed with cancer by a
healthcare professional
General Population
Cancer Patients
Sample
Size:
n=4,012*
*includes n=162 cancer patients
(natural fallout)
n=1,142**
**includes n=162 cancer patients from the gen pop natural
fallout + an oversample of n=980
Field Dates: July 21 – September 8, 2020
For all US adults age 18+ figures for age by gender, education, region, household
size, income, marital status, and employment status were adjusted, as needed to
population distributions from the US Census Bureau, separately for Hispanic,
Black/African American (not Hispanic) and all other (not Hispanic). Then each
race/ethnicity group was combined into an overall total based on their proportion
within the US adult population. The adults age 18+ with cancer were weighted
separately, as needed, using population distributions from the CDC’s NHIS for
those diagnosed with cancer, using the same demographic variables as above.
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Report Notes
• Percentages may not add up to 100% due to weighting and/or computer rounding and the acceptance of multiple responses.
• Unless otherwise noted, results for the Total (general population) are displayed.
• Statistical significance testing (at 95% confidence) is included where applicable – significant differences are noted throughout the
report with letters (A,B,C, etc.).
• In certain instances, some subgroups may be too small to report quantitatively for PR. Anything too small to report quantitatively
is noted with *Caution: small base (n<100). Results should be interpreted as directional only. Subgroup sample sizes that are
even smaller (<50 or <30), are noted with **Caution, very/extremely small base (n<50/30), results should be interpreted as
qualitative in nature.
• Colors and icons differentiate which audience is being represented within the detailed findings as shown below.
n=2,847
“No cancer experience”
Self or immediately family
member have not been
diagnosed with cancer
“Have/had cancer”
Have been diagnosed with
cancer themselves
n=1,142
“Family member/loved one”
Immediate family member/loved
one has had cancer, but is not a
caregiver
n=539
“Caregiver”
Immediate family member/loved one has
had cancer, and provides unpaid care for
that person
n=464
“Touched by cancer”
Collectively, these 3 audiences are referenced
to as those touched by cancer for brevity.
n=2,145
“General Population”
Includes family
member/loved ones,
caregivers, those with no
cancer experience, and the
n=162 cancer patients that
naturally fell out in the gen
pop sample
n=4,012
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Key Findings
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The Pandemic Takes Its Toll on Patients and Prevention
Most patients are limiting contact with others because of COVID-19, leaving caregivers wishing they could do more
• Most patients (81%) are limiting their contact with others because they are scared of getting COVID-19 and half (49%) feel they
have had to make a lot of sacrifices to their daily life because of their heightened risk for COVID-19
• Roughly two-thirds of family members and caregivers wish there was more they could do to support their loved one, both
practically (69% and 71%, respectively) and emotionally (67% and 69%, respectively)
• For caregivers whose loved one’s cancer is active or in partial remission, this is especially true - 84% wish there was more they
could do to help and 77% wish there was more they could do to emotionally support their loved one during the pandemic
The pandemic causes major delays in cancer screenings – meanwhile, many are not taking basic steps of cancer prevention
• Nearly one in four adults (24%) delayed or cancelled routine cancer screening tests because of the pandemic
• Among those who delayed or cancelled, two-thirds of the time (66%) it was the patient who chose to delay/cancel
• More than six in 10 (63%) who delayed or skipped their appointment(s) are concerned about being behind on their cancer
screening(s)
• At the same time, fewer than half of Americans report that they take important preventive actions to reduce their cancer risk
such as using sunblock (48%), maintaining a healthy weight (47%), and limiting alcohol consumption (42%)
KEY FINDINGS
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Americans acknowledge there are inequities – but - most are unaware of the impact race has on cancer care and survival
• Nearly three in five (59%) agree racism can impact the care a person receives within the U.S. healthcare system
• And, half of Americans (53%) feel Black Americans are less likely to have access to the same quality of cancer care as White
Americans
• Despite this, only around a quarter of Americans (24%) say a person’s race status affects the likelihood they will get the best
possible cancer care and less than one in five (19%) believe race has an impact on a person’s likelihood of surviving cancer
People of color are far more likely to be aware of inequities
• Non-white adults are more likely to agree racism can impact care within US health system (Black 76%, Hispanic 70%, and
Asian (66%) compared to 53% of White adults)
• And, 71% of Black adults say that Blacks are less likely to have access to the same quality of care as Whites, compared to 47%
of White adults
• Black and Hispanic adults are more likely than White adults to say race impacts both access to the best possible cancer care
(Black 41% and Hispanic 28% compared to 20% of White adults) as well as survival (Black 27% and Hispanic 22% compared
to 16% of White adults)
Awareness of Inequities Exists, but Unevenly Across Races
KEY FINDINGS
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Most Do Not Understand Realities of Clinical Trials
There is a lack of understanding of clinical trials – even among cancer patients
• Only about half of U.S. adults (53%) say they are knowledgeable about clinical trials
• Even among those who have/had cancer, only 1 in 10 (11%) report being very knowledgeable
• Most adults (91%) feel that clinical trials involve some risk with about 1 in 5 (21%) believing there is a lot of risk
• But, nearly half of people (48%) believe cancer patients who participate in clinical trials are not receiving the best possible care and
are just part of an experiment
• Further, three quarters of Americans (75%), including 87% of cancer patients, believe that some people who participate in cancer
clinical trials receive a placebo rather than actual treatment
Despite a lack of understanding, most Americans say they would be willing to participate in a cancer clinical trial
• Three in four Americans (75%) say they would be willing to participate in a clinical trial for a cancer treatment if they had cancer
• And, nearly three quarters of adults (74%) agree participating in a clinical trail is worth the risks for benefit of greater good
• That said, two-thirds (67%) say they wish they knew more about how clinical trials worked
KEY FINDINGS
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Key Trended General Population Findings
Findings signal an increase in understanding of key risk factors – but may not actually be taking meaningful steps to reduce cancer risk
• When it comes to risk, people are more likely to say that they think smoking e-cigarettes (53% up from 42% in 2018) and alcohol (34%
up from 30% in 2017) increases a person’s risk of getting cancer
• Adults are more likely to say that they care deeply and incorporate cancer prevention into their daily life (27% vs. 24% in 2019)
• They are also more likely to say they talked with their doctor about what they can do to reduce their cancer risk (22% vs. 18% in 2019)
– but at the same time are more likely to say they thought they had cancer based on information they found online (12% vs. 9% in
2019)
• However, when it comes to making actual changes, the only significant change in behavior was an increase in taking supplements to
reduce risk (50% vs. 44% in 2017-2019) and also a drop in concern about getting cancer (54% down from 57% in 2019 and 63% in
2017) - which may be due to an increased focus on overall health due to the pandemic
Knowledge about the dangers of e-cigarettes seem to be growing though it is coupled with an increase in users
• Adults are less likely to say e-cigarettes are a healthier alternative to traditional cigarettes (34% vs. 39% in 2019) and to say that the
long-term health effects of e-cigarettes aren’t yet known (70% vs. 76% in 2019)
• And, there seems to be growing support for banning e-cigs (48% vs. 41% in 2019) and flavored e-cigs (55% vs. 46% in 2019)
• However, adults are more likely to say they have tried e-cigarettes (34% vs. 27% in 2019) and the proportion saying they use daily or
recreationally has grown (15% vs. 13% in 2019)
KEY FINDINGS
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Detailed Findings
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COVID-19 and Cancer Care
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Yes (NET): 24%
Yes (NET): 64%
42%
28%
36%
Yes, I chose to delay/cancel
Yes, my provider delayed/ cancelled
No, had tests as planned
16%
10%
13%
63%
Yes, I chose to delay/cancel
Yes, my provider delayed/ cancelled
No, had tests as planned
N/A, was not scheduled for any
COVID-19 AND CANCER CARE
1 in 4 U.S. Adults Say Routine Cancer Screening Tests Have Been Delayed or
Cancelled Because of the Pandemic
Among those who were scheduled for a routine cancer screening test during the pandemic, nearly two-thirds say the test was delayed or
cancelled, most commonly by their own volition.
Delayed/Skipped Routine Cancer Screening Tests
Among those who were scheduled for a
screening test during the pandemic
BASE: QUALIFIED RESPONDENTS (n=4012)
Q11n2020 As a result of the COVID-19 pandemic, have you had to delay or cancel any routine cancer screening tests such as a mammogram, colonoscopy, lung scan, skin check, or PAP/HPV test?
BASE: SCHEDULED FOR CANCER SCREENING DURING PANDEMIC (n=1587)
Q11n2020 As a result of the COVID-19 pandemic, have you had to delay or cancel any routine cancer screening tests such as a mammogram, colonoscopy, lung scan, skin check, or PAP/HPV test?
Black adults are more likely
than White adults to have not
been scheduled for any cancer
screening tests during the
pandemic (68% vs. 61%)
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COVID-19 AND CANCER CARE
More Than 3 in 5 Who Delayed or Skipped Routine Cancer Screenings Concerned
Regardless of whether the delay was a personal choice or HCP requested, the concern remains the same.
Concern About Being Behind on Cancer Screening(s)
Among those who delayed or skipped
BASE: DELAYED OR SKIPPED ROUTINE CANCER SCREENINGS (n=1066); PERSONALLY DELAYED (n=704), HCP REQUESTED DELAY (n=451)
Q12n2020 How concerned are you about being behind on your cancer screening(s)?
10%
26%
37%
26%
Very concerned
Somewhat concerned
Not very concerned
Not at all concerned
63%
37%
Among those who
personally delayed
or skipped
Among those whose
HCP requested
delayed or skip
64%
Top 2 Box
Concern
64%
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2%
2%
3%
5%
6%
5%
14%
18%
11%
34%
38%
23%
45%
37%
58%
Very concerned
Somewhat concerned
Not very concerned
Not at all concerned
Already have/had
COVID-19
COVID-19 AND CANCER CARE
At Least Three-Quarters Concerned About Themselves or Their Loved One with
Cancer Contracting COVID-19
8 in 10 patients are concerned about contracting the virus and a similar proportion of caregivers are concerned their loved one will get
COVID-19.
BASE: HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE AND PERSON IS NOT DECEASED (n=284), CAREGIVER AND LOVED ONE IS NOT DECEASED (n=259); NO CANCER EXPERIENCE (n=2847)
Q6n2020 How concerned are you, if at all, about [your loved one] contracting COVID-19?
Concern About [Loved One] Contracting COVID-19
Among those who have/had cancer or whose love one is not deceased
% Very/
Somewhat
concerned
79%
74%
81%
(A)
Have/Had Cancer
(B)
Family Member/
Loved One
(C)
Caregiver
AB
C
71% of those with no cancer
experience are
very/somewhat concerned
about contracting COVID
C
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81%
76%
49%
43%
33%
30%
22%
I have limited my contact with others because I am scared of getting COVID-
19
I have the help I need during the COVID-19 pandemic (e.g., someone to run
errands if I need, help picking up medications, etc.)
I have had to make a lot of sacrifices in my daily life because of my
heightened risk for COVID-19
The COVID-19 pandemic has had a negative impact on my mental health
I wish I had more emotional support during the COVID-19 pandemic
The COVID-19 pandemic has had a negative impact on my physical health
I could have used more help during the COVID-19 pandemic (e.g., someone
to run errands if I need, help picking up medications, etc.)
COVID-19 AND CANCER CARE
Most Patients Limiting Contact with Others, with Half Feeling They Have Had to
Make a Lot of Sacrifices Because of Their Heightened Risk for COVID-19
Patients with active cancer are particularly likely to agree they have had to make a lot of sacrifices, that they wish they had more emotional
support, could have used more practical support, and that the pandemic has had a negative impact on their physical health.
BASE: HAVE/HAD CANCER (n=1142), ACTIVE CANCER (n=148)
Q7n2020 To what extent do you agree or disagree with the following statements?
Agreement with Statements About COVID-19
(% Strongly/Somewhat agree)
Among those who have/had cancer
Active Cancer
81%
78%
58%
45%
42%
41%
35%
84% White cancer
patients vs. 73%
Black cancer patients
61% Black
cancer patients
vs. 47% White
cancer patients
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76%
71%
69%
51%
62%
73%
51%
83%
69%
67%
55%
53%
48%
33%
My loved one has the help they need during the COVID-19 pandemic (e.g.,
someone to run errands if they need, help picking up medications, etc.)
I wish there was more I could do to support my loved one during the COVID-19
pandemic (e.g., run errands if they need, help picking up medications, etc.).
I wish there was more I could do to emotionally support my loved one during
the COVID-19 pandemic
I have limited my contact with my loved one because I am scared of them
getting COVID-19.
The COVID-19 pandemic has had a negative impact on my loved one’s mental
health.
My loved one has had to make a lot of sacrifices in their daily life because of
their heightened risk for COVID-19.
The COVID-19 pandemic has had a negative impact on my loved one’s
physical health.
Active/
Partial
Remission
75%
84%
77%
57%
72%
82%
64%
COVID-19 AND CANCER CARE
Around Half of Family Members and Caregivers Have Limited Contact with Their
Loved One, with Many Wishing There Was More They Could Do to Help
Roughly two-thirds of family members and caregivers wish there was more they could do to support their loved one, both practically and
emotionally. For caregivers whose loved one has active cancer or is in partial remission this is especially true. Family members and
caregivers whose loved one’s cancer is active or they are in partial remission are particularly likely to say the pandemic has had a negative
impact on their loved one’s mental and physical health.
BASE: FAMILY MEMBER/LOVED ONE AND PERSON IS NOT DECEASED (n=284), ACTIVE/PARTIAL REMISSION (n=113); CAREGIVER AND LOVED ONE IS NOT DECEASED (n=259), ACTIVE/PARTIAL REMISSION (n=137)
Q7n2020 To what extent do you agree or disagree with the following statements?
Agreement with Statements About COVID-19
(% Strongly/Somewhat agree)
Among those whose loved one is not deceased
(B)
Family Member/
Loved One
(C)
Caregiver
B
B
Active/
Partial
Remission
81%
69%
66%
59%
67%
50%
49%
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BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBER HAS/HAD CANCER AND PERSON IS NOT DECEASED; HAVE/HAD CANCER (n=1142), ACTIVE (n=148); FAMILY MEMBER/LOVED ONE (n=284), ACTIVE/PARTIAL
REMISSION (n=113); CAREGIVER (n=259), ACTIVE/PARTIAL REMISSION (n=137)
Q4n2020 In which of the following ways, if any, has [your/your loved one’s] cancer care been impacted by the COVID-19 pandemic? Please select all that apply.
16%
15%
12%
2%
2%
1%
*
1%
68%
13%
14%
12%
1%
2%
2%
*
3%
67%
24%
33%
22%
5%
4%
5%
3%
-
44%
Healthcare provider visit(s) delayed or cancelled
Met with healthcare provider via telemedicine (phone or video) instead of
in-person
Cancer monitoring test(s) delayed or cancelled
Lost health insurance coverage
Treatment (e.g., surgery, radiation, chemotherapy, immunotherapy, etc.)
delayed or cancelled
Changed a planned treatment regimen
Did not participate in a cancer clinical trial as planned
Other
None
Have/Had Cancer (A)
Family Member/Loved One (B)
Caregiver (C)
COVID-19 AND CANCER CARE
Cancer Care Impacted by Pandemic for at Least 1 in 3 Touched by Cancer
Most common impacts relate to HCP visits being delayed or done via telemedicine instead of in-person. Caregivers are much more likely than
patients or family member/loved ones to report COVID-19 has impacted their loved one’s cancer care.
COVID-19 Impact on Cancer Care
Among those who have/had cancer or whose loved one is not deceased
50%
AB
AB
AB
AB
A
A
C
C
Cancer care was
impacted (NET)
32%
33%
56%
50%
Active^
74%
^Family member/Loved one and Caregiver
represent active and partial remission
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16%
15%
12%
2%
2%
1%
*
1%
68%
Healthcare provider visit(s) delayed or cancelled
Met with healthcare provider via telemedicine (phone or video) instead of in-
person
Cancer monitoring test(s) delayed or cancelled
Lost health insurance coverage
Treatment (e.g., surgery, radiation, chemotherapy, immunotherapy, etc.)
delayed or cancelled
Changed a planned treatment regimen
Did not participate in a cancer clinical trial as planned
Other
None
COVID-19 AND CANCER CARE
Patients with Active Cancer Most Likely to Report Impacts to Cancer Care Due
to Pandemic
Half of patients with active cancer report some impact on their cancer care. Comparatively, the proportion of cancer patients overall reporting
impacts is roughly a third.
COVID-19 Impact on Cancer Care
Among those who have/had cancer
Active Cancer
25%
24%
22%
6%
14%
7%
3%
1%
50%
BASE: HAVE/HAD CANCER (n=1142), ACTIVE (n=148)
Q4n2020 In which of the following ways, if any, has your cancer care been impacted by the COVID-19 pandemic? Please select all that apply.
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COVID-19 AND CANCER CARE
Majority of Patients Who Met with HCP via Telemedicine During Pandemic
Report Their HCP Initiated
However, only about half report delays or cancellations of HCP visits and cancer monitoring tests were HCP initiated with more being self
initiated compared to telemedicine visits.
BASE: HAVE/HAD CANCER AND CANCER CARE WAS IMPACTED (n=variable)
Q5n2020 For each of the following, please indicate whether the delay or cancellation was requested by you/your loved one or your/their healthcare provider?
Who Initiated Delay or Cancellation
Among those who have/had cancer and their cancer care was impacted
17%
44%
47%
83%
56%
53%
Telemedicine instead of in-person visit
(n=169)
Healthcare provider visit delay or
cancellation
(n=167)
Cancer monitoring test delay or
cancellation
(n=120)
HCP initiated
Self initiated
Note: Treatment delay or cancellation (n=18) and Change of planned treatment regimen (n=10) have not been included due to extremely small base sizes.
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Inequities in Cancer
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INEQUITIES IN CANCER
Majorities Believe Certain Demographics Impact Cancer Access and Survival
For both, the most common impact is believed to be health insurance type or status, followed by income level and geographic location.
BASE: QUALIFIED RESPONDENTS (n=4012)
Q1n2020 Which of the following, if any, do you believe impacts the likelihood that a person is able to access the best possible cancer care? Please select all that apply.
Q2n2020 And, which of the following, if any, do you believe impacts the likelihood that a person will survive cancer? Please select all that apply.
Items that Impact Likelihood a Person Is Able to…
70%
55%
47%
30%
24%
23%
21%
15%
13%
56%
44%
32%
15%
19%
17%
16%
10%
27%
Health insurance type or status
Income level
Geographic location
Citizenship status
Race
Disability status
Level of education
Sexual orientation or gender identity
None of these
Access the best possible cancer care
Survive cancer
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INEQUITIES IN CANCER
Black Adults More Likely Than Any Other Race to Say Race Impacts Access
Black adults are twice as likely as White and Asian adults to say race impacts access to the best possible cancer care. Black and Hispanic
adults are more likely than White adults to say race impacts both access to the best possible cancer care as well as survival.
BASE: QUALIFIED RESPONDENTS (n=4012; WHITE (n=1999),BLACK (n=552), HISPANIC (n=982), ASIAN (n=327); WHITE PATIENTS (n=900), BLACK PATIENTS (n=125)
Q1n2020 Which of the following, if any, do you believe impacts the likelihood that a person is able to access the best possible cancer care? Please select all that apply.
Q2n2020 And, which of the following, if any, do you believe impacts the likelihood that a person will survive cancer? Please select all that apply.
Items that Impact Likelihood a Person Is Able to…
24%
19%
Race
Access the best possible cancer care
Survive cancer
White
(A)
Black
(B)
Hispanic
(C)
Asian
(D)
White Cancer
Patients (E)
Black Cancer
Patients (F)
20% 41% ACD 28% AD 20% 19% 41% E
16% 27% A 22% A 21% 20% 35% E
Among all respondents
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29%
28%
26%
21%
15%
15%
12%
12%
11%
8%
8%
8%
4%
I don't/didn't know how/where to access best in class care
I am/was not sure how to assess the quality of care I am receiving/received
I go/went to the closest facility to where I live, but it is not the highest quality one available
I can't/couldn't afford it
Because of my race
Providers (physicians, cancer specialists, etc.) are/were not available where I live
Lack of transportation to cancer care facility (e.g., no vehicle, unable to drive)
I don't/didn't have health insurance
Treatment delays due to appointment schedule
Because of my sexual orientation or gender identity
I have/had too many family obligations (child, elderly parent, etc.)
Because of a language barrier
I can't/couldn't miss time off from work
INEQUITIES IN CANCER
For Patients Who Actually Feel They Did Not Receive the Best Care, Uncertainty of How
to Assess or Access Quality Care Tops List
Patients also report being limited by geographic location and cost. More than 1 in 10 cancer patients who feel they aren’t/didn’t receive the
best possible cancer care say believe it is because of their race.
BASE: DISAGREE ABOUT RECEIVING GOOD CARE (HAVE/HAD CANCER (n=104)
Q925 Why do you feel that you are not receiving/did not receive the best possible cancer care? Please select all that apply.
Reasons for Lack of Confidence in Quality of Cancer Care
Among those who have/had cancer and disagree about receiving good care
New response option in 2020
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INEQUITIES IN CANCER
Three in Five Agree Racism Can Impact the Care a Person Receives within the
U.S. Healthcare System
Non-White adults are also more likely to believe Black Americans are less likely to have access to the same qualify of cancer care as White
Americans.
59%
53%
Racism can impact the care a person receives within the
U.S. healthcare system.
Black Americans are less likely to have access to the same
quality of cancer care as White Americans.
Agreement with Statements About Access to Cancer Care
(% Strongly/Somewhat agree)
BASE: QUALIFIED RESPONDENTS (n=4012; WHITE (n=1999),BLACK (n=552), HISPANIC (n=982), ASIAN (n=327)
Q3n2020 To what extent do you agree or disagree with the following statements?
White
(A)
Black
(B)
Hispanic
(C)
Asian
(D)
53% 76% AD 70% A 66% A
47% 71% ACD 60% A 60% A
Black cancer patients are more likely than
White cancer patients to agree with these
statements
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67%
Someone living in a rural area is less likely to have access to the
same quality of cancer care as someone living in an urban or
suburban area.
Agreement with Statements About Access to Cancer Care
(% Strongly/Somewhat agree)
INEQUITIES IN CANCER
Two-Thirds Believe People in Rural Areas Are Less Likely to Have Access to
Same Quality Care as Those in Urban or Suburban Areas
Those in urban areas more likely than those in rural areas to agree. Those touched by cancer are more likely than those with no cancer
experience to agree there are geographical inequities.
Urban
(A)
Suburban
(B)
Rural
(C)
69% C 67% 62%
BASE: QUALIFIED RESPONDENTS (n=4012; URBAN (n=1444),SUBURBAN (n=1725), RURAL (n=843)
Q3n2020 To what extent do you agree or disagree with the following statements?
Those who are touched by cancer are more likely
than those with no cancer experience to agree (70%
patients, 72% family member/loved one, 71%
caregiver vs. 64% no experience)
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Clinical Trial Myths
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CLINICAL TRIAL MYTHS
Only About Half of U.S. Adults Say They Are Knowledgeable About Clinical Trials
Few feel very knowledgeable - even patients. Three-quarters perceive there is some risk involved with clinical trials, with about 1 in 5
believing there is a lot of risk.
BASE: QUALIFIED RESPONDENTS (n=4012; HAVE/HAD CANCER (n=1142)
Q8n2020 How knowledgeable would you say you are you about clinical trials?
Q9n2020 In your opinion, how much risk, if any, is associated with participating in clinical trials?
14%
33%
43%
10%
Very knowledgeable
Somewhat knowledgeable
Not very knowledgeable
Not at all knowledgeable
53%
47%
Knowledge of Clinical Trials
21%
71%
9%
A lot of risk
Some risk
No risk at all
Perception of Risk Involved with Clinical Trials
Those with no cancer experience are
more likely than those touched by
cancer to believe there is no risk at all
involved with clinical trials (11% vs.
5% have/had cancer, 6% family
member/loved one, 4% caregiver)
Have/Had Cancer
Knowledgeable
(NET)
59%
White cancer patients are more
likely than Black cancer patients
to say they are knowledgeable
about clinical trials (60% vs. 45%)
Even among those who have/had
cancer, only 1 in 10 (11%) report being
very knowledgeable
At least some
risk (NET)
91%
28
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8%
14%
9%
11%
18%
17%
24%
26%
52%
43%
46%
49%
22%
26%
21%
15%
Participating in a clinical trial is worth the risks for the benefit of the
greater good
If I had COVID-19, I would be willing to participate in a clinical trial for
a COVID-19 treatment
I wish I knew more about how clinical trials worked
Participating in a clinical trial is worth the risks for my own benefit
Agreement with Statements About Clinical Trials
Strongly disagree Somewhat disagree Somewhat agree Strongly agree
CLINICAL TRIAL MYTHS
Three-Quarters of Adults Agree Participating in a Clinical Trail is Worth the
Risks for Benefit of Greater Good
Fewer - though still a majority - agree the risks are worth it for their own benefit. Two-thirds wish they knew more about how clinical trials
worked.
BASE: QUALIFIED RESPONDENTS (n=4012)
Q10n2020 To what extent do you agree or disagree with the following statements about clinical trials?
Agree
(NET)
74%
69%
67%
63%
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CLINICAL TRIAL MYTHS
Despite Majority Reporting They Would Be Willing to Participate in Cancer
Clinical Trial, Many Hold Inaccurate Beliefs About Them
Three-quarters of U.S. adults would be willing to participate in a cancer clinical trial, despite a similar proportion saying some patients receive
a placebo and half saying cancer clinical trial participants are just part of an experiment and are not receiving the best possible care. Only
two-thirds of patients would be willing to participate, perhaps because nearly 9 in 10 believe that they might receive a placebo, and many feel
they are a last resort.
9%
5%
8%
14%
14%
16%
20%
25%
36%
38%
48%
43%
45%
37%
35%
27%
32%
22%
14%
13%
[If I had cancer] I would be willing to participate in a clinical trial
for a cancer treatment
Some cancer patients who participate in clinical trials may receive
a placebo and not actual treatment
Clinical trials are usually a last resort for cancer patients who
have run out of all other treatment options
All cancer patients should consider participating in a clinical trial
Cancer patients who participate in clinical trials are not receiving
the best possible cancer care, they are just part of an experiment
Agreement with Statements About Cancer Clinical Trials
Strongly disagree Somewhat disagree Somewhat agree Strongly agree
BASE: QUALIFIED RESPONDENTS (n=4012; HAVE/HAD CANCER (n=1142)
Q10n2020 To what extent do you agree or disagree with the following statements about clinical trials?
Agree
(NET)
Have/Had
Cancer
Agree
(NET)
75% 66%
75% 87%
67% 67%
51% 48%
48% 46%
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Demographics
31
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31%
23%
25%
21%
18-34
35-49
50-64
65+
62% White
16% Hispanic
12% Black/African American
6% Asian or Pacific Islander
2% Mixed race
1% Native American
* Other race
2% Prefer not to answer
DEMOGRAPHICS – GENERAL POPULATION
Age
Race
Gender
47%
male
53%
female
Region
Locale
Children in HH
33%
Urban
46%
Suburban
21%
Rural
0 kids
1 to 2 kids
3+ kids
6%
61%
34%
24%
West
21%
Northeast
35%
South
21%
Midwest
BASE: QUALIFIED RESPONDENTS (n=4012)
Demographics
12%
83%
LGBTQ Not LGBTQ
LGBTQ
Mean: 46.5
5% prefer not to answer
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9%
57%
34%
Less than high school
High school to less than 4 year
degree
4 year college degree or more
7% Less than $15,000
7% $15,000 to $24,999
7% $25,000 to $34,999
11% $35,000 to $49,999
16% $50,000 to $74,999
13% $75,000 to $99,999
34% $100,000 +
5% Prefer not to Answer
DEMOGRAPHICS – GENERAL POPULATION
Education
Household Income
76%
absolutely
certain
BASE: QUALIFIED RESPONDENTS (n=4012)
Demographics
Marital Status
29% Never married
53% Married/Living with Partner
11% Divorced
2% Separated
5% Widow/Widower
41% Employed full time
10% Employed part time
5% Self-employed full time
4% Self-employed part time
6% Not employed, but looking for work
2% Not employed, and not looking for work
4% Not employed, unable to work due to disability or illness
19% Retired
4% Student
5% Stay at home spouse/partner
Employment
Adults in HH
1
17%
21%
49%
9%
4%
2
3
4
5+
35%
32%
25%
8%
Political Party
RepublicanDemocrat Independent
Other
33
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3%
12%
27%
58%
18-34
35-49
50-64
65+
79% White
7% Black/African American
6% Hispanic
3% Asian or Pacific Islander
2% Mixed race
2% Other race
1% Native American
1% Prefer not to answer
DEMOGRAPHICS – HAVE/HAD CANCER
Age
Race
Gender
42%
male
58%
female
Region
Locale
Children in HH
22%
Urban
51%
Suburban
28%
Rural
0 kids
1 to 2 kids
3+ kids
1%
85%
14%
20%
West
22%
Northeast
34%
South
23%
Midwest
BASE: HAVE/HAD CANCER (n=1142)
Demographics
6%
92%
LGBTQ Not LGBTQ
LGBTQ
2% prefer not to answer
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4%
57%
38%
Less than HS
High school to less than 4 year
degree
4 year college degree or more
6% Less than $15,000
9% $15,000 to $24,999
10% $25,000 to $34,999
11% $35,000 to $49,999
17% $50,000 to $74,999
13% $75,000 to $99,999
28% $100,000 +
6% Prefer not to Answer
DEMOGRAPHICS – HAVE/HAD CANCER
Education
Household Income
76%
absolutely
certain
BASE: HAVE/HAD CANCER (n=1142)
Demographics
Marital Status
7% Never married
64% Married/Living with Partner
15% Divorced
2% Separated
12% Widow/Widower
Employment
Adults in HH
1
12%
27%
57%
4%
1%
2
3
4
5+
38%
35%
23%
4%
Political Party
22% Employed full time
9% Employed part time
2% Self-employed full time
3% Self-employed part time
4% Not employed, but looking for work
1% Not employed, and not looking for work
7% Not employed, unable to work due to disability or illness
50% Retired
* Student
2% Stay at home spouse/partner
Republican
Democrat Independent
Other
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Cancer Profiles
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24%
17%
7%
6%
5%
5%
4%
4%
4%
3%
3%
2%
1%
1%
1%
14%
Breast
Prostate
Melanoma
Uterine/Ovarian
Lung
Colorectal
Non-Hodgkin Lymphoma
Bladder
Thyroid
Leukemia
Kidney
Liver
Pancreatic
Stomach
Esophagus
Other
12%
In the past year
12%
1 - less than 2 years ago
31%
2-5 years ago
18%
6-10 years
25%
More than 10 years ago
*
Prefer not to answer
2%
Not sure
PROFILE – HAVE/HAD CANCER
Cancer Type
Time of Diagnosis
Metastatic Cancer Experience
Current Cancer Status
Active
Partial Remission
Complete Remission
73%
13%
14%
BASE: HAVE/HAD CANCER (n=1142)
Q765, Q900, Q10, Q12
14%
82%
4%
Yes No Not sure
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21%
12%
9%
7%
7%
5%
4%
4%
4%
4%
4%
4%
3%
3%
1%
9%
Breast
Lung
Prostate
Uterine/Ovarian
Colorectal
Leukemia
Kidney
Melanoma
Pancreatic
Esophagus
Liver
Stomach
Thyroid
Non-Hodgkin Lymphoma
Bladder
Other
8%
In the past year
13%
1 - less than 2 years ago
23%
2-5 years ago
19%
6-10 years
33%
More than 10 years ago
2%
Prefer not to answer
3%
Not sure
PROFILE –FAMILY MEMBER/LOVED ONE
Cancer Type
Time of Diagnosis
Current Cancer Status
Active
Partial Remission
Complete Remission
32%
8%
12%
BASE: FAMILY/LOVED ONE HAS CANCER (n=539)
Q765, Q901, Q12
Person is Deceased
48%
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10%
In the past year
12%
1 - less than 2 years ago
31%
2-5 years ago
19%
6-10 years
26%
More than 10 years ago
1%
Prefer not to answer
1%
Not sure
PROFILE – CAREGIVER
Cancer Type
Time of Diagnosis
Current Cancer Status
Active
Partial Remission
Complete Remission
28%
14%
12%
BASE: CAREGIVER (n=464)
Q765, Q901, Q12
Person is Deceased
46%
21%
12%
12%
6%
5%
5%
5%
5%
4%
3%
3%
3%
3%
3%
2%
9%
Breast
Lung
Prostate
Uterine/Ovarian
Colorectal
Leukemia
Kidney
Melanoma
Non-Hodgkin Lymphoma
Esophagus
Pancreatic
Thyroid
Stomach
Bladder
Liver
Other
Harris Insights & Analytics LLC, A Stagwell Company
39
Appendix
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Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX
Research Methodology
Method statement (to be included in all materials for public release)
This survey was conducted online in the U.S. by The Harris Poll on behalf of ASCO between July 21 – September 8, 2020
among 4,012 US adults aged 18+ and 1,142 adults with cancer. For all US adults age 18+ figures for age by gender,
education, region, household size, income, marital status, and employment status were adjusted, as needed to population
distributions from the US Census Bureau, separately for Hispanic, Black/African American (not Hispanic) and all other (not
Hispanic). Then each race/ethnicity group was combined into an overall total based on their proportion within the US adult
population. The adults age 18+ with cancer were weighted separately, as needed, using population distributions from the
CDC’s NHIS for those diagnosed with cancer, using the same demographic variables as above.
All sample surveys and polls, whether or not they use probability sampling, are subject to multiple sources of error which are
most often not possible to quantify or estimate, including sampling error, coverage error, error associated with nonresponse,
error associated with question wording and response options, and post-survey weighting and adjustments. Therefore, The
Harris Poll avoids the words “margin of error” as they are misleading. All that can be calculated are different possible
sampling errors with different probabilities for pure, unweighted, random samples with 100% response rates. These are only
theoretical because no published polls come close to this ideal. Respondents for this survey were selected among those
who have agreed to participate in online surveys. No estimates of theoretical sampling error can be calculated.
