Harris Insights & Analytics LLC, A Stagwell Company
ASCO 2020 National
Cancer Opinions Survey
October 2020
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Table of Contents
Page
Research Methodology
3
Report Notes
4
Key Findings
5
Detailed Findings
Attitudes About Cancer Risk 10
COVID-19 and Cancer Care 22
Access to Best Possible Care 31
Clinical Trial Myths 40
E-Cigarette Use & Perceptions 44
Affordability of Cancer Care 52
Cancer Management 59
Demographics 70
Cancer Profiles 75
Health Insurance Profiles 79
Appendix (Trended data) 82
INTRODUCTION
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Research Methodology
Mode:
Online survey
Length:
20 Minutes
Qualification Criteria:
General Population
• US residents
• Age 18+
Cancer Patients
• US residents
• Age 18+
• Ever diagnosed with cancer by a
healthcare professional
General Population
Cancer Patients
Sample
Size:
n=4,012*
*includes n=162 cancer patients
(natural fallout)
n=1,142**
**includes n=162 cancer patients from the gen pop natural
fallout + an oversample of n=980
Field Dates: July 21 – September 8, 2020
This survey was conducted online in the U.S. by The Harris Poll on behalf of ASCO
between July 21 – September 8, 2020 among 4,012 US adults aged 18+ and an
oversample of 980 adults 18+ with cancer for a total of 1,142 adults with cancer. For all
US adults age 18+ figures for age by gender, education, region, household size,
income, marital status, and employment status were adjusted, as needed to population
distributions from the US Census Bureau, separately for Hispanic, Black/African
American (not Hispanic) and all other (not Hispanic). Then each race/ethnicity group
was combined into an overall total based on their proportion within the US adult
population. The adults age 18+ with cancer were weighted separately, as needed,
using population distributions from the CDC’s NHIS for those diagnosed with cancer,
using the same demographic variables as above.
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Report Notes
• Percentages may not add up to 100% due to weighting and/or computer rounding and the acceptance of multiple responses.
• Unless otherwise noted, results for the Total (general population) are displayed.
• Statistical significance testing (at 95% confidence) is included where applicable – significant differences are noted throughout the
report with letters (A,B,C, etc.).
• In certain instances, some subgroups may be too small to report quantitatively for PR. Anything too small to report quantitatively
is noted with *Caution: small base (n<100). Results should be interpreted as directional only. Subgroup sample sizes that are
even smaller (<50 or <30), are noted with **Caution, very/extremely small base (n<50/30), results should be interpreted as
qualitative in nature.
• Colors and icons differentiate which audience is being represented within the detailed findings as shown below.
n=2,847
“No cancer experience”
Self or immediately family
member have not been
diagnosed with cancer
“Have/had cancer”
Have been diagnosed with
cancer themselves
n=1,142
“Family member/loved one”
Immediate family member/loved
one has had cancer, but is not a
caregiver
n=539
“Caregiver”
Immediate family member/loved one has
had cancer, and provides unpaid care for
that person
n=464
“Touched by cancer”
Collectively, these 3 audiences are referenced
to as those touched by cancer for brevity.
n=2,145
“General Population”
Includes family
member/loved ones,
caregivers, those with no
cancer experience, and the
n=162 cancer patients that
naturally fell out in the gen
pop sample
n=4,012
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Key Findings
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Key Trended General Population Findings
Findings signal an increase in understanding of key risk factors – but may not actually be taking meaningful steps to reduce cancer risk
• When it comes to risk, people are more likely to say that they think smoking e-cigarettes (53% up from 42% in 2018) and alcohol (34%
up from 30% in 2017) increases a person’s risk of getting cancer
• Adults are more likely to say that they care deeply and incorporate cancer prevention into their daily life (27% vs. 24% in 2019)
• They are also more likely to say they talked with their doctor about what they can do to reduce their cancer risk (22% vs. 18% in 2019)
– but at the same time are more likely to say they thought they had cancer based on information they found online (12% vs. 9% in
2019)
• However, when it comes to making actual changes, the only significant change in behavior was an increase in taking supplements to
reduce risk (50% vs. 44% in 2017-2019) and also a drop in concern about getting cancer (54% down from 57% in 2019 and 63% in
2017) - which may be due to an increased focus on overall health due to the pandemic
Knowledge about the dangers of e-cigarettes seem to be growing though it is coupled with an increase in users
• Adults are less likely to say e-cigarettes are a healthier alternative to traditional cigarettes (34% vs. 39% in 2019) and to say that the
long-term health effects of e-cigarettes aren’t yet known (70% vs. 76% in 2019)
• And, there seems to be growing support for banning e-cigs (48% vs. 41% in 2019) and flavored e-cigs (55% vs. 46% in 2019)
• However, adults are more likely to say they have tried e-cigarettes (34% vs. 27% in 2019) and the proportion saying they use daily or
recreationally has grown (15% vs. 13% in 2019)
KEY FINDINGS
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The Pandemic Takes Its Toll on Patients and Prevention
Most patients are limiting contact with others because of COVID-19, leaving caregivers wishing they could do more
• Most patients (81%) are limiting their contact with others because they are scared of getting COVID-19 and half (49%) feel they
have had to make a lot of sacrifices to their daily life because of their heightened risk for COVID-19
• Roughly two-thirds of family members and caregivers wish there was more they could do to support their loved one, both
practically (69% and 71%, respectively) and emotionally (67% and 69%, respectively)
• For caregivers whose loved one’s cancer is active or in partial remission, this is especially true - 84% wish there was more they
could do to help and 77% wish there was more they could do to emotionally support their loved one during the pandemic
The pandemic causes major delays in cancer screenings – meanwhile, many are not taking basic steps of cancer prevention
• Nearly one in four adults (24%) delayed or cancelled routine cancer screening tests because of the pandemic
• Among those who delayed or cancelled, two-thirds of the time (66%) it was the patient who chose to delay/cancel
• More than six in 10 (63%) who delayed or skipped their appointment(s) are concerned about being behind on their cancer
screening(s)
• At the same time, fewer than half of Americans report that they take important preventive actions to reduce their cancer risk
such as using sunblock (48%), maintaining a healthy weight (47%), and limiting alcohol consumption (42%)
KEY FINDINGS
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Americans acknowledge there are inequities – but - most are unaware of the impact race has on cancer care and survival
• Nearly three in five (59%) agree racism can impact the care a person receives within the U.S. healthcare system
• And, half of Americans (53%) feel Black Americans are less likely to have access to the same quality of cancer care as White
Americans
• Despite this, only around a quarter of Americans (24%) say a person’s race status affects the likelihood they will get the best
possible cancer care and less than one in five (19%) believe race has an impact on a person’s likelihood of surviving cancer
People of color are far more likely to be aware of inequities
• Non-white adults are more likely to agree racism can impact care within US health system (Black 76%, Hispanic 70%, and
Asian (66%) compared to 53% of White adults)
• And, 71% of Black adults say that Blacks are less likely to have access to the same quality of care as Whites, compared to 47%
of White adults
• Black and Hispanic adults are more likely than White adults to say race impacts both access to the best possible cancer care
(Black 41% and Hispanic 28% compared to 20% of White adults) as well as survival (Black 27% and Hispanic 22% compared
to 16% of White adults)
Awareness of Inequities Exists, but Unevenly Across Races
KEY FINDINGS
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Most Do Not Understand Realities of Clinical Trials
There is a lack of understanding of clinical trials – even among cancer patients
• Only about half of U.S. adults (53%) say they are knowledgeable about clinical trials
• Even among those who have/had cancer, only 1 in 10 (11%) report being very knowledgeable
• Most adults (91%) feel that clinical trials involve some risk with about 1 in 5 (21%) believing there is a lot of risk
• But, nearly half of people (48%) believe cancer patients who participate in clinical trials are not receiving the best possible care and
are just part of an experiment
• Further, three quarters of Americans (75%), including 87% of cancer patients, believe that some people who participate in cancer
clinical trials receive a placebo rather than actual treatment
Despite a lack of understanding, most Americans say they would be willing to participate in a cancer clinical trial
• Three in four Americans (75%) say they would be willing to participate in a clinical trial for a cancer treatment if they had cancer
• And, nearly three quarters of adults (74%) agree participating in a clinical trail is worth the risks for benefit of greater good
• That said, two-thirds (67%) say they wish they knew more about how clinical trials worked
KEY FINDINGS
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Attitudes About Cancer
Risk
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ATTITUDES ABOUT CANCER RISK
Most Adults Concerned About Developing Cancer in Their Lifetime
Concern for developing cancer second only to heart attack or heart disease
52%
47%
41%
41%
47%
39%
37%
47%
51%
55%
54%
42%
48%
43%
1%
2%
3%
5%
11%
13%
20%
Alzheimer's disease
Stroke
Heart attack or heart disease
Cancer
Diabetes
Arthritis
High blood pressure
Disease Concerns/Diagnoses
Not at all/Not very concerned Very/Somewhat concerned Already diagnosed
BASE: QUALIFIED RESPONDENTS (n=4012)
Q601 How concerned are you that you may develop the following diseases in your lifetime?
Q615 Has a doctor, nurse, or other health professional ever told an immediate family member (child, parent, sibling) or loved one that they have any of the following? Please select all that apply.
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (n=1098)
Q13 You indicated that an immediate family member or loved one has been diagnosed with cancer. Have you provided unpaid care to this person?
50%
29%
39%
28%
22%
14%
10%
% with Immediate Family
Member/Loved One Diagnosed
44% provide
unpaid care to
their family
member with
cancer
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ATTITUDES ABOUT CANCER RISK
Concern Over Developing Cancer Continues to Decline This Year
BASE: QUALIFIED RESPONDENTS (2017; n=4016, 2018; n=4038, 2019; n=4001, 2020; n=4012)
Q601 How concerned are you that you may develop the following diseases in your lifetime?
2017
(A)
2018
(B)
2019
(C)
2020
(D)
Heart attack or heart disease 62%
BCD 55% 57% 55%
Cancer 63%
BCD 58% D 57% D 54%
Stroke 57%
BCD 51% 53% 51%
Arthritis 51%
BC 47% 45% 48%
Alzheimer’s disease 56%
BCD 49% 50% 47%
High blood pressure 44% 42% 43% 43%
Diabetes 46%
D 44% 43% 42%
Trended Disease Concern
(% Very/Somewhat Concerned)
Patterns of declining concern from 2017 seen across many health conditions
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62%
60%
50%
48%
46%
42%
34%
28%
23%
14%
12%
3%
7%
Dying from cancer
Side effects of the treatment
Loss of control over my life
Suffering/pain
Being a physical or emotional burden on family/friends
Long-term complications
Financial impact on my family
Paying for treatment
Not knowing what caused it
Being treated differently by family/friends/co-workers
Negative impact on work/professional opportunities
Something else
I do not have any concerns
63%
57%
61%
63%
61%
48%
58%
50%
22%
19%
22%
4%
2%
ATTITUDES ABOUT CANCER RISK
Those with Cancer Least Likely to Say Greatest Concerns are Financial
Family members/loved ones and caregivers are more likely than those who have/had cancer to be concerned with losing control over their lives
and being a burden on their family or friends
BASE: QUALIFIED RESPONDENTS (n=4012; HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464), NO EXPERIENCE (n=2847))
Q770 What are/were your greatest concerns about being diagnosed with cancer? Please select all that apply.
67%
61%
59%
65%
61%
46%
52%
49%
19%
23%
27%
4%
3%
(A) (C)
56%
49%
51%
54%
48%
37%
48%
42%
19%
19%
21%
3%
12%
(D)
Greatest Concerns About
Being Diagnosed with Cancer
(B)
Have/Had Cancer
Family Member/
Loved One
Caregiver
No Experience
D
D
D
D
D
D
AD
AD
AD
AD
A
AD
AD
D
D
D
A
AD A
AD
AD
A
D
A
A
AD
A
A
BC
ABC
Financial
fears (NET)
43%
62%
68%
58%
A
AD
A
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ATTITUDES ABOUT CANCER RISK
One-Third Feel Most Cancers Are Caused By Lifestyle Choices
Around 1 in 4 believe cancers are caused by family history
BASE: QUALIFIED RESPONDENTS (n=4012)
Q700 Which of the following do you think most cancers are caused by?
Beliefs About Causes of Cancer
34%
28%
13%
10%
2%
13%
Lifestyle choices
(e.g., smoking, sun
exposure, diet)
Family history
(i.e., hereditary
factors)
Random mutations in
a person’s genes
Environmental
causes
(e.g., pollutants)
Other Not sure
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80%
66%
63%
58%
53%
Smoking cigarettes
Family history/hereditary
factors
Use of other tobacco
products
Sun exposure
Smoking E-cigarettes
Top 5 Beliefs About Cancer Risk Factors
ATTITUDES ABOUT CANCER RISK
Smoking Cigarettes Remains Most Commonly Known Risk Factor
The use of other tobacco products and e-cigarettes also land on the list of the top 5 most common cancer risk factors, and not smoking or
using tobacco products remains the top cancer reduction behavior taken
BASE: QUALIFIED RESPONDENTS (n=4012)
Q705 Which of the following do you think increases a person’s risk of getting cancer? Please select all that apply.
Q715 Which of the following describes what you currently do to reduce your risk of getting cancer [again or getting another type of cancer]? Please select all that apply.
62%
52%
50%
48%
47%
Not smoke or use tobacco
products
Eat lots of fruits and
vegetables
Take vitamins or
supplements
Use sunblock
Maintain a healthy weight
Top 5 Cancer Risk Reduction Behaviors Practiced
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ATTITUDES ABOUT CANCER RISK
Adults More Likely to Believe Smoking E-Cigarettes Increases Cancer Risk
BASE: QUALIFIED RESPONDENTS (2018; n=4038, 2019; n=4001, 2020; n=4012)
Q705 Which of the following do you think increases a person’s risk of getting cancer? Please select all that apply.
Trended Beliefs About Cancer Risk Factors
2018
(B)
2019
(C)
2020
(D)
Smoking cigarettes
80% 81% 80%
Family history/hereditary factors
69% D 69% D 66%
Use of other tobacco products (e.g., cigars, pipes, chewing tobacco, etc.)
64% 66% 63%
Sun exposure
62% D 63% D 58%
Genetic mutations
48% 48% 46%
Smoking e-
cigarettes
42% 50% B 53% BC
Obesity
35% 36% 34%
Alcohol
31% 31% 34% B
Processed meats
32% D 33% D 26%
Artificial sweeteners
28% D 28% D 23%
Certain viral infections
24% 23% 22%
Cell phones
16% 16% 14%
Caffeine
8% 9% 9%
Other
2% D 2% 1%
Not sure
5% 4% 4%
I don’t think anything increases a person’s risk of getting cancer
3% 4% 3%
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ATTITUDES ABOUT CANCER RISK
Less than Half of Adults Taking Important Steps for Cancer Prevention
Using sunblock, limiting exposure to sun without sunblock, maintaining a health weight, and limiting alcohol consumption are key cancer
prevention steps being taken by less than half of adults
BASE: QUALIFIED RESPONDENTS (n=4012)
Q715 Which of the following describes what you currently do to reduce your risk of getting cancer [again or getting another type of cancer]? Please select all that apply.
62%
52%
50%
48%
47%
47%
42%
31%
27%
22%
15%
1%
11%
Not smoke or use tobacco products
Eat lots of fruits and vegetables
Take vitamins or supplements
Use sunblock
Maintain a healthy weight
Limit skin's exposure to the sun without sunblock
Limit alcohol consumption
Avoid using artificial sweeteners
Avoid eating processed meats
Limit caffeine intake
Limit cell phone usage
Other
I am not doing anything to reduce my risk of cancer
Cancer Risk Reduction Behaviors Practiced
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33%
21%
17%
24%
42%
61%
59%
47%
25%
18%
24%
29%
Nothing you can do Comes and goes Care deeply
ATTITUDES ABOUT CANCER RISK
Just Over 1 in 4 Incorporate Cancer Prevention Into Their Daily Life
Those who have/had cancer are most likely to say that prior to diagnosis, they felt there was nothing they could do to prevent getting it
BASE: QUALIFIED RESPONDENTS (n=4012; HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464), NO EXPERIENCE (n=2847))
Q716 [Prior to being diagnosed with cancer] Which of the following best describes how you think [thought] about your cancer risk?
If going to get cancer,
going to get it. Nothing
you can do
23%
Concern comes & goes.
Some days worry more than
others
50%
Care deeply & incorporate
cancer prevention into daily life
27%
Cancer Risk Perspective
(A)
(B)
Have/Had Cancer
Family Member/
Loved One
(C)
Caregiver
(D)
No Experience
B
BCD
AD
AD
AB
A
C
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ATTITUDES ABOUT CANCER RISK
A Minority of Adults Have Talked to a Doctor About Cancer Risk/Prevention
Gen Z is least likely to have talked to a doctor about their risk; younger generations are more likely than their older counterparts to have thought
they had cancer based solely on information they found online
BASE: QUALIFIED RESPONDENTS (n=4012; GEN Z (n=638), MILLENNIALS (n=1141), GEN X (n=1095), BOOMERS (n=997), SILENT (n=141))
Q717 Which of the following, if any, have you ever done? Please select all that apply.
26%
22%
22%
12%
49%
Searched online for what to do to reduce my
cancer risk
Talked to a doctor about my cancer risk
Talked to a doctor about what I should do to
reduce my cancer risk
Thought I had cancer based solely on
information I had found online (rather than being
diagnosed by a doctor)
None of these
Action Taken Regarding Cancer Risk
Gen Z
(18-23)
(A)
Millennials
(24-39)
(B)
Gen X
(40-55)
(C)
Boomers
(56-73)
(D)
Silent
(74+)
(E)
21%
E
34%
ADE
31%
ADE
18%
E
9%
13% 21%
A
27%
AB
24%
A
19%
11% 24%
AE
27%
ADE
21%
AE
10%
20%
CDE
17%
DE
13%
DE
6% 1%
53%
BC
40% 44% 59%
BC
70%
ABCD
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ATTITUDES ABOUT CANCER RISK
Many Unsure What Information to Trust, Believe About What Causes Cancer
While the majority of adults agree that there is a lot of information on this available, 6 in 10 or more say they aren’t sure which sources to
trust, that it’s hard to know the most important things to do to reduce their risk of getting cancer, and they don’t know which information to
believe
5%
9%
7%
8%
11%
9%
11%
11%
14%
18%
21%
22%
26%
28%
27%
29%
50%
45%
49%
52%
45%
47%
44%
43%
31%
28%
23%
18%
17%
16%
18%
17%
There is a lot of information available about what causes
cancer.
These days it seems like everything causes cancer.
I try to avoid thinking about my risk of getting cancer [again or
getting another type of cancer].
I feel informed about the things I need to do to reduce my risk of
getting cancer [again or getting another type of cancer].
I’m not sure which sources to trust when it comes to information
about what causes cancer.
A lot of things people say causes cancer aren’t supported by
scientific evidence.
It is hard to know the most important things to do to reduce my
risk of getting cancer [again or getting another type of cancer].
When it comes to information about what causes cancer, I don’t
know what to believe.
Agreement with Statements About Cancer Risk and Information
Strongly disagree Somewhat disagree Somewhat agree Strongly agree
BASE: QUALIFIED RESPONDENTS (n=4012)
Q718 To what extent do you agree or disagree with the following statements about cancer?
Agree
(NET)
81%
74%
72%
70%
63%
63%
63%
60%
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ATTITUDES ABOUT CANCER RISK
However, More Certainty Around Which Sources to Trust and What
Information to Believe Compared to Last Year
BASE: QUALIFIED RESPONDENTS (2019; n=4001, 2020; n=4012)
Q718 To what extent do you agree or disagree with the following statements about cancer?
2019
(C)
2020
(D)
There is a lot of information available about what causes cancer. 81% 81%
These days it seems like everything causes cancer. 81%
D 74%
I try to avoid thinking about my risk of getting cancer [again or getting another
type of cancer].
69% 72% C
I feel informed about the things I need to do to reduce my risk of getting cancer
[again or getting another type of cancer].
71% 70%
I’m not sure which sources to trust when it comes to information about what
causes cancer.
66% D 63%
A lot of things people say causes cancer aren’t supported by scientific
evidence.
67% D 63%
It is hard to know the most important things to do to reduce my risk of getting
cancer [again or getting another type of cancer].
64% 63%
When it comes to information about what causes cancer, I don’t know what to
believe.
66% D 60%
Trended Agreement with Statements About Cancer Risk and Information
(% Strongly/Somewhat Agree)
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COVID-19 and Cancer Care
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Yes (NET): 64%
42%
28%
36%
Yes, I chose to delay/cancel
Yes, my provider delayed/ cancelled
No, had tests as planned
Yes (NET): 24%
16%
10%
13%
63%
Yes, I chose to delay/cancel
Yes, my provider delayed/ cancelled
No, had tests as planned
N/A, was not scheduled for any
COVID-19 AND CANCER CARE
1 in 4 Delayed/Cancelled Routine Cancer Screening Tests Due to Pandemic
Among those who were scheduled for a routine cancer screening test during the pandemic, nearly two-thirds say they delayed or cancelled,
most commonly by their own volition
Delayed/Skipped Routine Cancer Screening Tests
Delayed/Skipped Routine Cancer Screening Tests
Among those who were scheduled for a screening test during the pandemic
BASE: QUALIFIED RESPONDENTS (n=4012)
Q11n2020 As a result of the COVID-19 pandemic, have you had to delay or cancel any routine cancer screening tests such as a mammogram, colonoscopy, lung scan, skin check, or PAP/HPV test?
BASE: SCHEDULED FOR CANCER SCREENING DURING PANDEMIC (n=1587)
Q11n2020 As a result of the COVID-19 pandemic, have you had to delay or cancel any routine cancer screening tests such as a mammogram, colonoscopy, lung scan, skin check, or PAP/HPV test?
Black adults are more likely
than White adults to have not
been scheduled for any cancer
screening tests during the
pandemic (68% vs. 61%)
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COVID-19 AND CANCER CARE
More Than 3 in 5 Who Delayed or Skipped Routine Cancer Screenings Concerned
Regardless of whether the delay was a personal choice or HCP requested, the concern remains the same
Concern About Being Behind on Cancer Screening(s)
Among those who delayed or skipped
BASE: DELAYED OR SKIPPED ROUTINE CANCER SCREENINGS (n=1066); PERSONALLY DELAYED (n=704), HCP REQUESTED DELAY (n=451)
Q12n2020 How concerned are you about being behind on your cancer screening(s)?
10%
26%
37%
26%
Very concerned
Somewhat concerned
Not very concerned
Not at all concerned
63%
37%
Among those who
personally delayed
or skipped
Among those whose
HCP requested
delayed or skip
64%
Top 2 Box
Concern
64%
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2%
2%
3%
5%
6%
5%
14%
18%
11%
34%
38%
23%
45%
37%
58%
Very concerned
Somewhat concerned
Not very concerned
Not at all concerned
Already have/had
COVID-19
COVID-19 AND CANCER CARE
Majorities Concerned About Themselves, Loved Ones Contracting COVID-19
8 in 10 of those who have/had cancer are concerned about contracting the virus and a similar proportion of caregivers are concerned their
loved one will get COVID-19
BASE: HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE AND PERSON IS NOT DECEASED (n=284), CAREGIVER AND LOVED ONE IS NOT DECEASED (n=259); NO CANCER EXPERIENCE (n=2847)
Q6n2020 How concerned are you, if at all, about [your loved one] contracting COVID-19?
Concern About [Loved One] Contracting COVID-19
Among those who have/had cancer or whose love one is not deceased
% Very/
Somewhat
concerned
79%
74%
81%
(A)
Have/Had Cancer
(B)
Family Member/
Loved One
(C)
Caregiver
AB
C
71% of those with no cancer
experience are
very/somewhat concerned
about contracting COVID-19
C
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81%
76%
49%
43%
33%
30%
22%
I have limited my contact with others because I am scared of getting
COVID-19
I have the help I need during the COVID-19 pandemic (e.g., someone to
run errands if I need, help picking up medications, etc.)
I have had to make a lot of sacrifices in my daily life because of my
heightened risk for COVID-19
The COVID-19 pandemic has had a negative impact on my mental health
I wish I had more emotional support during the COVID-19 pandemic
The COVID-19 pandemic has had a negative impact on my physical
health
I could have used more help during the COVID-19 pandemic (e.g.,
someone to run errands if I need, help picking up medications, etc.)
COVID-19 AND CANCER CARE
Most Limiting Contact With Others, With Half Feeling They Had to Make
Sacrifices Because of Their Heightened Risk for COVID-19
Those with active cancer are particularly likely to agree they have had to make a lot of sacrifices in their daily life, that they wish they had
more emotional support, could have used more practical support, and that the pandemic has had a negative impact on their physical health
BASE: HAVE/HAD CANCER (n=1142), ACTIVE CANCER (n=148)
Q7n2020 To what extent do you agree or disagree with the following statements?
Agreement with Statements About COVID-19
(% Strongly/Somewhat agree)
Among those who have/had cancer
Active
Cancer
81%
78%
58%
45%
42%
41%
35%
61% Black
cancer patients
vs. 47% White
cancer patients
84% White cancer patients vs.
73% Black cancer patients
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76%
71%
69%
51%
62%
73%
51%
83%
69%
67%
55%
53%
48%
33%
My loved one has the help they need during the COVID-19 pandemic (e.g.,
someone to run errands if they need, help picking up medications, etc.)
I wish there was more I could do to support my loved one during the COVID-19
pandemic (e.g., run errands if they need, help picking up medications, etc.).
I wish there was more I could do to emotionally support my loved one during
the COVID-19 pandemic
I have limited my contact with my loved one because I am scared of them
getting COVID-19.
The COVID-19 pandemic has had a negative impact on my loved one’s mental
health.
My loved one has had to make a lot of sacrifices in their daily life because of
their heightened risk for COVID-19.
The COVID-19 pandemic has had a negative impact on my loved one’s
physical health.
Active/
Partial
Remission
75%
84%
77%
57%
72%
82%
64%
COVID-19 AND CANCER CARE
Around Half of Family Members and Caregivers Have Limited Contact With
Their Loved One, With Many Wishing There Was More They Could Do To Help
Roughly two-thirds of family members/loved ones and caregivers wish there was more they could do to support their loved one, both
practically and emotionally. For caregivers whose loved one has active cancer or is in partial remission this is especially true. Those whose
loved one’s cancer is active or they are in partial remission are particularly likely to say the pandemic has had a negative impact on their
loved one’s mental and physical health
BASE: FAMILY MEMBER/LOVED ONE AND PERSON IS NOT DECEASED (n=284), ACTIVE/PARTIAL REMISSION (n=113); CAREGIVER AND LOVED ONE IS NOT DECEASED (n=259), ACTIVE/PARTIAL REMISSION (n=137)
Q7n2020 To what extent do you agree or disagree with the following statements?
Agreement with Statements About COVID-19
(% Strongly/Somewhat agree)
Among those whose loved one is not deceased
(B)
Family Member/
Loved One
(C)
Caregiver
B
B
Active/
Partial
Remission
81%
69%
66%
59%
67%
50%
49%
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BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBER HAS/HAD CANCER AND PERSON IS NOT DECEASED; HAVE/HAD CANCER (n=1142), ACTIVE (n=148); FAMILY MEMBER/LOVED ONE (n=284), ACTIVE/PARTIAL REMISSION (n=113); CAREGIVER (n=259),
ACTIVE/PARTIAL REMISSION (n=137)
Q4n2020 In which of the following ways, if any, has [your/your loved one’s] cancer care been impacted by the COVID-19 pandemic? Please select all that apply.
BASE: DID NOT PARTICIPATE IN CLINICAL TRIAL (n=16**)
Q4An2020 You mentioned [you/your loved one] did not participate in a clinical trial as planned because of the COVID-19 pandemic. Which of the following reasons best describes why [you/your loved one] did not participate?
16%
15%
12%
2%
2%
1%
*
1%
68%
13%
14%
12%
1%
2%
2%
*
3%
67%
24%
33%
22%
5%
4%
5%
3%
-
44%
Healthcare provider visit(s) delayed or cancelled
Met with healthcare provider via telemedicine (phone or video)
instead of in-person
Cancer monitoring test(s) delayed or cancelled
Lost health insurance coverage
Treatment (e.g., surgery, radiation, chemotherapy,
immunotherapy, etc.) delayed or cancelled
Changed a planned treatment regimen
Did not participate in a cancer clinical trial as planned
Other
None
Have/Had Cancer (A)
Family Member/Loved One (B)
Caregiver (C)
COVID-19 AND CANCER CARE
Cancer Care Impacted by Pandemic for at Least 1 in 3 Touched By Cancer
The most common impacts relate to HCP visits being delayed or done via telemedicine instead of in-person. Caregivers are much more likely
than those who have/had cancer or family members/loved ones to report COVID-19 has impacted their loved one’s cancer care
COVID-19 Impact on Cancer Care
Among those who have/had cancer or whose loved one is not deceased
The most common reason
that they/their loved one
didn’t participate is that the
clinical trial was completed**
50%
AB
AB
AB
AB
A
A
C
C
Cancer care was
impacted (NET)
32%
33%
56%
AB
50%
Active^
74% B
^Family member/loved one and caregiver
represent active and partial remission
**Caution, very/extremely small base (n<50/30), results should be interpreted
as qualitative in nature.
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16%
15%
12%
2%
2%
1%
*
1%
68%
Healthcare provider visit(s) delayed or cancelled
Met with healthcare provider via telemedicine (phone or video) instead of in-
person
Cancer monitoring test(s) delayed or cancelled
Lost health insurance coverage
Treatment (e.g., surgery, radiation, chemotherapy, immunotherapy, etc.)
delayed or cancelled
Changed a planned treatment regimen
Did not participate in a cancer clinical trial as planned
Other
None
COVID-19 AND CANCER CARE
Those with Active Cancer Most Likely to Report Impacts to Care Due to Pandemic
Half of those with active cancer report some impact on their cancer care. Comparatively, the proportion of those who have/had cancer overall
reporting impacts is roughly a third
COVID-19 Impact on Cancer Care
Among those who have/had cancer
Active Cancer
25%
24%
22%
6%
14%
7%
3%
1%
50%
BASE: HAVE/HAD CANCER (n=1142), ACTIVE (n=148)
Q4n2020 In which of the following ways, if any, has your cancer care been impacted by the COVID-19 pandemic? Please select all that apply.
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COVID-19 AND CANCER CARE
Majority Who Met HCP Via Telemedicine During Pandemic Say HCP Initiated
However, only about half report delays or cancellations of HCP visits and cancer monitoring tests were HCP initiated, with more being self
initiated compared to telemedicine visits
BASE: HAVE/HAD CANCER AND CANCER CARE WAS IMPACTED (n=variable)
Q5n2020 For each of the following, please indicate whether the delay or cancellation was requested by you/your loved one or your/their healthcare provider?
Who Initiated Delay or Cancellation
Among those who have/had cancer and their cancer care was impacted
17%
44%
47%
83%
56%
53%
Telemedicine instead of in-person visit
(n=169)
Healthcare provider visit delay or
cancellation
(n=167)
Cancer monitoring test delay or
cancellation
(n=120)
HCP initiated
Self initiated
Note: Treatment delay or cancellation (n=18) and Change of planned treatment regimen (n=10) have not been included due to extremely small base sizes.
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Access to Best Possible
Care
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71%
70%
67%
77%
10% 19% 46% 25%
Strongly disagree Somewhat disagree
Somewhat agree Strongly agree
ACCESS TO BEST POSSIBLE CARE
Many Uncertain About How Future of Healthcare Will Impact Care
Caregivers are more likely to agree with this than those who have/had cancer or those with no experience
BASE: QUALIFIED RESPONDENTS (n=4012, HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464), NO EXPERIENCE (2847))
Q65 How much do you agree or disagree with the following statement about the U.S. healthcare system?
(A)
(C)
(D)
(B)
Have/Had Cancer
Family Member/
Loved One
Caregiver
No Experience
AD
(% Agree (NET))
“I am uncertain about how the future of
the healthcare system will impact my
ability to get the best possible care.”
71%
Agree
(NET)
Agreement with Statement About Future of Healthcare
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ACCESS TO BEST POSSIBLE CARE
Majorities Believe Certain Demographics Impact Cancer Access and Survival
For both, the most common impact is believed to be health insurance type or status, followed by income level and geographic location.
BASE: QUALIFIED RESPONDENTS (n=4012)
Q1n2020 Which of the following, if any, do you believe impacts the likelihood that a person is able to access the best possible cancer care? Please select all that apply.
Q2n2020 And, which of the following, if any, do you believe impacts the likelihood that a person will survive cancer? Please select all that apply.
Items that Impact Likelihood a Person Is Able to…
70%
55%
47%
30%
24%
23%
21%
15%
13%
56%
44%
32%
15%
19%
17%
16%
10%
27%
Health insurance type or status
Income level
Geographic location
Citizenship status
Race
Disability status
Level of education
Sexual orientation or gender identity
None of these
Access the best possible cancer care
Survive cancer
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ACCESS TO BEST POSSIBLE CARE
Black Adults More Likely Than Any Other Race to Say Race Impacts Access
Black adults are twice as likely as White and Asian adults to say race impacts access to the best possible cancer care. Black and Hispanic
adults are more likely than White adults to say race impacts both access to the best possible cancer care as well as survival.
BASE: QUALIFIED RESPONDENTS (n=4012; WHITE (n=1999),BLACK (n=552), HISPANIC (n=982), ASIAN (n=327); WHITE PATIENTS (n=900), BLACK PATIENTS (n=125)
Q1n2020 Which of the following, if any, do you believe impacts the likelihood that a person is able to access the best possible cancer care? Please select all that apply.
Q2n2020 And, which of the following, if any, do you believe impacts the likelihood that a person will survive cancer? Please select all that apply.
Items that Impact Likelihood a Person Is Able to…
24%
19%
Race
Access the best possible cancer care
Survive cancer
White
(A)
Black
(B)
Hispanic
(C)
Asian
(D)
White Cancer
Patients (E)
Black Cancer
Patients (F)
20% 41%
ACD
28%
AD
20% 19% 41%
E
16% 27%
A
22%
A
21% 20% 35%
E
Among all respondents
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ACCESS TO BEST POSSIBLE CARE
Three in Five Agree Racism Can Impact the Care a Person Receives within the
U.S. Healthcare System
Non-White adults are also more likely to believe Black Americans are less likely to have access to the same qualify of cancer care as White
Americans.
59%
53%
Racism can impact the care a person receives within the
U.S. healthcare system.
Black Americans are less likely to have access to the same
quality of cancer care as White Americans.
Agreement with Statements About Access to Cancer Care
(% Strongly/Somewhat agree)
BASE: QUALIFIED RESPONDENTS (n=4012; WHITE (n=1999),BLACK (n=552), HISPANIC (n=982), ASIAN (n=327)
Q3n2020 To what extent do you agree or disagree with the following statements?
White
(A)
Black
(B)
Hispanic
(C)
Asian
(D)
53% 76%
AD
70%
A
66%
A
47% 71%
ACD
60%
A
60%
A
Black cancer patients are more likely than
White cancer patients to agree with these
statements
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67%
Someone living in a rural area is less likely to have access to the
same quality of cancer care as someone living in an urban or
suburban area.
Agreement with Statements About Access to Cancer Care
(% Strongly/Somewhat agree)
ACCESS TO BEST POSSIBLE CARE
Two-Thirds Believe People in Rural Areas Are Less Likely to Have Access to
Same Quality Care as Those in Urban or Suburban Areas
Those in urban areas more likely than those in rural areas to agree. Those touched by cancer are more likely than those with no cancer
experience to agree there are geographical inequities.
Urban
(A)
Suburban
(B)
Rural
(C)
69%
C
67% 62%
BASE: QUALIFIED RESPONDENTS (n=4012; URBAN (n=1444),SUBURBAN (n=1725), RURAL (n=843)
Q3n2020 To what extent do you agree or disagree with the following statements?
Those who are touched by cancer are more likely
than those with no cancer experience to agree (70%
patients, 72% family member/loved one, 71%
caregiver vs. 64% no experience)
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71%
75%
62%
38%
30%
30%
77%
78%
67%
46%
35%
38%
91%
90%
57%
32%
24%
21%
I am [They are/were] receiving/received the best possible
cancer care.
I am/was [They are/were] satisfied with the quality of the
doctors who specialize in cancer care near where I [they] live.
I am uncertain about how the future of the healthcare system
will impact my [their] ability to get the best possible cancer
care.
If the location where I [they] receive/received cancer care
closed, I [they] wouldn't know where else to go.
There aren't/weren't enough doctors who specialize in cancer
care near where I [they] live.
I [they] have/had to travel too far to see the doctor who is/was
managing my [their] cancer care.
ACCESS TO BEST POSSIBLE CARE
Those with Cancer Hold More Positive Attitudes Towards Care Received
Family members/loved ones and caregivers are less likely to say their loved one is receiving the best possible care and that they are satisfied
with the doctors near where they live
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBER (HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464))
Q920 How much do you agree or disagree with each of the following statements?
(A) (B) (C)
Agreement with Statements About Cancer Care
(% Strongly/Somewhat agree)
Among those touched by cancer
BC
BC
A
A
A
AB
A
A
Have/Had Cancer
Family Member/
Loved One
Caregiver
White cancer patients are
more likely than Black
cancer patients to agree
Black cancer patients are
more likely than White
cancer patients to agree
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22%
29%
26%
16%
17%
7%
17%
13%
14%
14%
6%
5%
9%
18%
27%
30%
37%
27%
20%
5%
19%
19%
30%
7%
7%
6%
6%
10%
29%
28%
26%
21%
15%
15%
12%
12%
11%
8%
8%
8%
4%
19%
I [they] don't/didn't know how/where to access best in class care
I am/Was [they are/were] not sure how to assess the quality of care I am [they are]
receiving/received
I [they] go/went to the closest facility to where I [they] live, but it is not the highest quality one
available
I [they] can not/could not afford it
Providers are/were not available where I [they] live
Because of my [their] race
Lack of transportation to cancer care facility
I [they] don't/didn't have health insurance
Treatment delays due to appointment schedule
I [they] have/had too many family obligations
Because of my [their] sexual orientation or gender identity
Because of a language barrier
I [they] can't/couldn't miss time off from work
Other
ACCESS TO BEST POSSIBLE CARE
Lack of Perceived Quality Stems from Uncertainty of How to Access, Assess Care
Nearly 1 in 6 who have/had cancer that don’t believe they receive(d) the best possible care say it is because of their race
BASE: DISAGREE ABOUT RECEIVING GOOD CARE (HAVE/HAD CANCER (n=104), FAMILY MEMBER/LOVED ONE (n=148), CAREGIVER (n=124)
Q925 Why do you feel that you are not receiving/did not receive the best possible cancer care? Please select all that apply.
(A) (B) (C)
Reasons for Felt Did Not Receive
Best Possible Cancer Care
Among those who disagree about receiving best possible care
AB
Have/Had Cancer
Family Member/
Loved One
Caregiver
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ACCESS TO BEST POSSIBLE CARE
One-Third Say Insurance Makes it Difficult to Obtain Best Care
Deductibles, pre-authorization requirements, and copays are the most common aspects of health insurance coverage that made it difficult for
those who have/had cancer to obtain the best possible care
14%
14%
13%
11%
11%
5%
2%
66%
Deductibles
Pre-authorization requirements
Co-pays
Insurance premiums
Coinsurance
Lack of/inadequate prescription drug coverage
Other
No aspects of my health insurance have made it difficult to obtain the
best possible cancer care
BASE: HAVE HAD CANCER AND HAVE HEALTH INSURANCE (n=1120)
Q40 In your opinion and experience, which of the following aspects of your health insurance coverage, if any, make/made it difficult for you to obtain the best possible cancer care? Please select all that apply.
Aspects of Health Insurance that Make It Difficult to Obtain Best Possible Care
Among those who have/had cancer and have health insurance
At Least 1 Aspect
Makes It Difficult
(NET): 34%
White cancer patients (70%) are more
likely than Black cancer patients (50%)
to say no aspects of their health
insurance have made it difficult
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40
Clinical Trial Myths
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CLINICAL TRIAL MYTHS
Only About Half of Adults Say They Are Knowledgeable About Clinical Trials
Few feel very knowledgeable - even those who have/had cancer. 7 in 10 perceive there is some risk involved with clinical trials, with 1 in 5
believing there is a lot of risk
BASE: QUALIFIED RESPONDENTS (n=4012; HAVE/HAD CANCER (n=1142)
Q8n2020 How knowledgeable would you say you are you about clinical trials?
Q9n2020 In your opinion, how much risk, if any, is associated with participating in clinical trials?
14%
33%
43%
10%
Very knowledgeable
Somewhat knowledgeable
Not very knowledgeable
Not at all knowledgeable
53%
47%
Knowledge of Clinical Trials
21%
71%
9%
A lot of risk
Some risk
No risk at all
Perception of Risk Involved with Clinical Trials
Those with no cancer experience are
more likely than those touched by
cancer to believe there is no risk at all
involved with clinical trials (11% vs.
5% have/had cancer, 6% family
member/loved one, 4% caregiver)
Have/Had Cancer
Knowledgeable
(NET)
59%
White cancer patients are more
likely than Black cancer patients
to say they are knowledgeable
about clinical trials (60% vs. 45%)
Even among those who have/had
cancer, only 1 in 10 (11%) report being
very knowledgeable
At least some
risk (NET)
91%
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CLINICAL TRIAL MYTHS
Three-Quarters Agree Participating in a Clinical Trial is Worth the Risks for
Benefit of Greater Good
Fewer, though still a majority, agree the risks are worth it for their own benefit and two-thirds wish they knew more about how clinical trials
worked
8%
14%
9%
11%
18%
17%
24%
26%
52%
43%
46%
49%
22%
26%
21%
15%
Participating in a clinical trial is worth the risks for the benefit of the
greater good
If I had COVID-19, I would be willing to participate in a clinical trial for
a COVID-19 treatment
I wish I knew more about how clinical trials worked
Participating in a clinical trial is worth the risks for my own benefit
Agreement with Statements About Clinical Trials
Strongly disagree Somewhat disagree Somewhat agree Strongly agree
BASE: QUALIFIED RESPONDENTS (n=4012)
Q10n2020 To what extent do you agree or disagree with the following statements about clinical trials?
Agree
(NET)
74%
69%
67%
63%
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CLINICAL TRIAL MYTHS
Despite Majority Reporting They Would Be Willing to Participate in Cancer
Clinical Trial, Many Hold Inaccurate Beliefs About Them
Three-quarters of U.S. adults would be willing to participate in a cancer clinical trial, despite a similar proportion saying some patients receive
a placebo and half saying cancer clinical trial participants are just part of an experiment and are not receiving the best possible care. Only
two-thirds of those who have/had cancer would be willing to participate, perhaps because nearly 9 in 10 believe that they might receive a
placebo, and many feel clinical trials are a last resort.
9%
5%
8%
14%
14%
16%
20%
25%
36%
38%
48%
43%
45%
37%
35%
27%
32%
22%
14%
13%
[If I had cancer] I would be willing to participate in a clinical trial
for a cancer treatment
Some cancer patients who participate in clinical trials may receive
a placebo and not actual treatment
Clinical trials are usually a last resort for cancer patients who
have run out of all other treatment options
All cancer patients should consider participating in a clinical trial
Cancer patients who participate in clinical trials are not receiving
the best possible cancer care, they are just part of an experiment
Agreement with Statements About Cancer Clinical Trials
Strongly disagree Somewhat disagree Somewhat agree Strongly agree
BASE: QUALIFIED RESPONDENTS (n=4012; HAVE/HAD CANCER (n=1142)
Q10n2020 To what extent do you agree or disagree with the following statements about clinical trials?
Agree
(NET)
Have/Had
Cancer
Agree
(NET)
75% 66%
75% 87%
67% 67%
51% 48%
48% 46%
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44
E-Cigarette Use &
Perceptions
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Gen Z
(18-23)
(A)
Millennials
(24-39)
(B)
Gen X
(40-55)
(C)
Boomers
(56-73)
(D)
Silent
(74+)
(E)
58%
B
51% 60%
B
84%
ABC
88%
ABC
Gen Z
(18-23)
(A)
Millennials
(24-39)
(B)
Gen X
(40-55)
(C)
Boomers
(56-73)
(D)
Silent
(74+)
(E)
16%
DE
21%
DE
24%
ADE
4% 3%
E-CIGARETTE USE & PERCEPTIONS
Nearly 1 in 6 Adults Report Regularly Using E-Cigarettes
Use is highest among Gen X – with 1 in 4 saying they are a regular user
BASE: QUALIFIED RESPONDENTS (n=4012; GEN Z (n=638), MILLENNIALS (n=1141), GEN X (n=1095), BOOMERS (n=997), SILENT (n=141))
Q1010 Which of the following best describes your use of e-cigarettes?
Non-user
(NET): 66%
Self-Reported E-Cigarette Use
Regular User
(NET): 15%
63%
3%
19%
8%
7%
Have not tried and not interested in trying
Have not tried but interested in trying
Tried a few times but don't use regularly
Use every day or almost every day
Recreational user (i.e., weekends, social
situations)
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E-CIGARETTE USE & PERCEPTIONS
Reported Daily Use, Trial of E-Cigarettes Have Increased Since 2019
BASE: QUALIFIED RESPONDENTS (2019; n=4001, 2020; n=4012)
Q1010 Which of the following best describes your use of e-cigarettes?
Trended Self-Reported E-Cigarette Use
2019
(C)
2020
(D)
DAILY OR RECREATIONAL USER (NET) 13% 15%
C
I use them every day or almost every day. 6% 8% C
I am a recreational user (i.e., use them in social situations, on weekends, etc.).
7% 7%
I have tried them a few times but do not use them regularly. 15% 19%
C
NEVER TRIED (NET) 73% D 66%
I have not tried them, but I am interested in trying them. 4% 3%
I have not tried them, and I am not interested in trying them. 69%
D 63%
Increase in trial driven Millennials, Boomers, and Older adults, while increase in daily use driven by Gen X
Millennials (19% 2019 vs. 28% 2020)
Boomers (9% 2019 vs. 12% 2020)
Older (2% 2019 vs. 9% 2020)
Gen X (7% 2019 vs. 15% 2020)
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E-CIGARETTE USE & PERCEPTIONS
Majority of Parents of 9-17 Year Old's Say They Have Talked to Them About the
Dangers of E-Cigarettes
Ever Talked to Child(ren) 9-17 About E-Cigarettes
Among parents of pre-teen/teens
BASE: PARENT OF PRE-TEEN/TEEN (2019; n=694, 2020; n=1000)
Q1026 Have you ever talked to your child(ren) between the ages of 9 and 17 about the dangers of using e-cigarettes?
79%
21%
Yes
No
A similar proportion of parents said
the same last year (73%).
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E-CIGARETTE USE & PERCEPTIONS
Three-Quarters of Adults Agree that E-Cigarettes Cause Cancer
Still, around 1 in 5 believe you can’t get addicted to e-cigarettes and that they’re harmless
8%
13%
12%
26%
39%
54%
51%
58%
18%
17%
19%
27%
26%
24%
28%
25%
42%
34%
40%
34%
25%
12%
14%
10%
31%
36%
30%
13%
10%
10%
8%
7%
E-cigarettes cause cancer.
The long-term health effects of e-cigarettes aren’t yet known.
E-cigarettes are a gateway to using other tobacco products.
E-cigarettes can help people quit smoking traditional cigarettes.
E-cigarettes are a healthier alternative to traditional cigarettes.
You can’t get addicted to e-cigarettes.
Flavored e-cigarettes are less damaging to your health than non-
flavored e-cigarettes.
E-cigarettes are harmless.
Agreement with Statements About E-Cigarettes
Strongly disagree Somewhat disagree Somewhat agree Strongly agree
BASE: QUALIFIED RESPONDENTS (n=4012)
Q1005 To what extent do you agree or disagree with the following statements about e-cigarettes?
Agree
(NET)
74%
70%
70%
47%
34%
22%
22%
17%
49
Harris Insights & Analytics LLC, A Stagwell Company
E-CIGARETTE USE & PERCEPTIONS
Decline in Agreement That Long-Term Health Effects of E-Cigarettes Aren’t
Known Yet, That They Can Help with Quitting Traditional Cigarettes, and That
They Are a Healthier Alternative
BASE: QUALIFIED RESPONDENTS (2019; n=4001, 2020; n=4012)
Q1005 To what extent do you agree or disagree with the following statements about e-cigarettes?
Trended Agreement with Statements About E-Cigarettes
(% Strongly/Somewhat Agree)
2019
(C)
2020
(D)
E-cigarettes cause cancer. 71% 74%
The long-term health effects of e-cigarettes aren’t yet known. 76%
D 70%
E-cigarettes are a gateway to using other tobacco products. 67% 70%
E-
cigarettes can help people quit smoking traditional cigarettes.
54% D 47%
E-
cigarettes are a healthier alternative to traditional cigarettes.
39% D 34%
You can’t get addicted to e-
cigarettes.
20% 22%
Flavored e-cigarettes are less damaging to your health than non-flavored e-
cigarettes.
21% 22%
E-cigarettes are harmless. 16% 17%
50
Harris Insights & Analytics LLC, A Stagwell Company
48%
27%
25%
Banning the sale of:
E-cigarettes
Flavored e-cigarettes
55%
24%
22%
72%
12%
16%
(i.e., evaluating the products’
health and safety, enforcing
standards, etc.)
The FDA regulating e-cigarettes
E-CIGARETTE USE & PERCEPTIONS
Majority Support FDA Regulating E-Cigarettes and Raising Legal Purchase Age
However, only around half support outright bans of e-cigarettes
70%
17%
13%
Raising the legal age for
purchasing e-cigarettes
from 18 to 21 years of age
Support/Opposition for Potential Legislation
BASE: QUALIFIED RESPONDENTS (n=4012)
Q1040 Do you support or oppose each of the following?
18 21
Support Oppose Undecided
Regulation Banning
51
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E-CIGARETTE USE & PERCEPTIONS
Increase in Support for Banning the Sale of Flavored and Regular E-Cigarettes
Trended Support for Potential Legislation
(% Support)
BASE: QUALIFIED RESPONDENTS (2019; n=4001, 2020; n=4012)
Q1040 Do you support or oppose each of the following?
2019
(C)
2020
(D)
The Food and Drug Administration (FDA) regulating e-
cigarettes (i.e.,
evaluating the products’ health and safety, enforcing standards, etc.)
71% 72%
Raising the legal age for purchasing e-
cigarettes from 18 to 21 years of age
68% 70%
Banning sale of flavored e-
cigarettes
46% 55% C
Banning sale of e-
cigarettes
41% 48% C
Harris Insights & Analytics LLC, A Stagwell Company
52
Affordability of Cancer
Care
53
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10%
7%
14%
17%
13%
23%
32%
20%
25%
41%
20%
15%
41%
23%
An overwhelming amount A lot A little None Not financially responsible
AFFORDABILITY OF CANCER CARE
Finances Cause Anxiety for Majority of Those Who Have/Had Cancer, Caregivers
Even nearly 4 in 10 family members/loved ones feel the anxiety of financial burdens from a cancer diagnosis
(A)
(B) (C)
Amount of Anxiety Felt Regarding Financial Situation as a Result of Cancer Diagnosis
Among those touched by cancer
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBERS HAVE HAD CANCER (HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464)
Q22 How much anxiety do/did you feel specifically regarding your financial situation as a result of your/their cancer diagnosis?
AB
AB
BC
BC
AC
59%
B
Have
Anxiety
39%
Have
Anxiety
62%
B
Have
Anxiety
A
AC
Have/Had Cancer
Family Member/
Loved One
Caregiver
54
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20%
23%
33%
23%
31%
33%
21%
23%
15%
35%
23%
18%
Very concerned Somewhat concerned Not very concerned Not at all concerned
AFFORDABILITY OF CANCER CARE
Caregivers Most Concerned About Cancer Treatment Affordability
Two-thirds of caregivers who have financial responsibility for their loved one’s treatment are concerned about affordability compared to
around half of those who have/had cancer and family members/loved ones who have financial responsibility
(A)
(B) (C)
Concern About Treatment Affordability
Among those responsible for paying for treatment
AB
BC
A
44%
Concerned
54%
Concerned
67%
AB
Concerned
BASE: PAYING FOR TREATMENT (HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=267), CAREGIVER (n=325)
Q930. Concern about Being Able to Afford Cancer Treatment Among Those Who Pay for Treatment
A
A
Have/Had Cancer
Family Member/
Loved One
Caregiver
55
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13%
9%
11%
12%
9%
8%
8%
6%
2%
56%
10%
5%
5%
4%
4%
4%
3%
3%
2%
4%
84%
N/A
Skipped or postponed doctor appointments
Delayed having scan(s) performed to assess my cancer
Cut pain/anti-nausea pills in half
Postponed filling or did not fill prescriptions
Skipped doses of prescribed medications
Refused treatment
Ordered medications from non-U.S. sources
Cut oral chemotherapy pills in half
Other
None - have not done anything to reduce cancer treatment costs
Not sure
Mean # of actions taken
Among those who took action
2.1 2.2 2.3
6%
6%
6%
4%
3%
7%
4%
4%
2%
50%
30%
AFFORDABILITY OF CANCER CARE
Around 2 in 5 Caregivers Report Actions to Reduce Treatment Costs
The most common action taken according to caregivers is skipping or postponing doctors' appointments
(A)
(B) (C)
Actions Taken to Reduce Treatment Costs
Among those touched by cancer
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBERS HAVE HAD CANCER (HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464))
Q935 Which of the following have you/they done to reduce cancer treatment costs? Please select all that apply.
BASE: HAVE/HAD CANCER AND HAVE DONE ANYTHING TO REDUCE CANCER TREATMENT COSTS (n=182)
Q45 Have you talked with your doctor about the things you have done to reduce your cancer treatment costs?
50% have talked with
their doctor about
these things
--------------
17% haven’t, but
plan to
--------------
33% have not, and
do not plan to
AB
A
A
AB
A
AB
AB
B
B
BC
C
A
A
Have/Had Cancer
Family Member/
Loved One
Caregiver
56
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3%
2%
2%
3%
3%
2%
3%
1%
4%
88%
9%
9%
7%
6%
6%
5%
3%
3%
4%
76%
Delayed having scan(s) performed to assess my cancer
Skipped or postponed doctor appointments
Cut pain/anti-nausea pills in half
Postponed filling or did not fill prescriptions
Skipped doses of prescribed medications
Ordered medications from non-U.S. sources
Refused treatment
Cut oral chemotherapy pills in half
Other
None - have not done anything to reduce cancer
treatment costs
4%
1%
3%
8%
6%
8%
8%
3%
1%
85%
AFFORDABILITY OF CANCER CARE
Privately Insured More Likely than Publicly Insured to Delay Scans or Skip Appts
Those with public insurance are more likely than the privately insured to not have done anything to reduce costs
BASE: HAVE/HAD CANCER (n=1142; PRIVATE/PRIVATE (n=231), PRIVATE/PUBLIC (n=126), PUBLIC (n=724)
Q935 Which of the following have you/they done to reduce cancer treatment costs? Please select all that apply.
Actions Taken to Reduce Treatment Costs
Among Have/Had Cancer By Insurance Type
Private Insurance/
Payer (A)
Private Insurance/
Public Payer (B)
Public
Insurance (C)
C
BC
C
C
C
C
C
A
57
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29%
16%
15%
11%
12%
11%
9%
7%
3%
2%
48%
Mean # of steps taken
Among those who took steps
1.9 1.9 2.3
15%
9%
5%
4%
4%
3%
3%
2%
2%
4%
73%
Dipped into savings account(s)
Worked extra hours
Taken an early withdrawal from a
retirement account, college education fund, etc.
Postponed retirement
Taken on an additional job
Sold family heirlooms
Sold major assets such as a home, car, etc.
Taken out a second mortgage or another type of loan
Filed for bankruptcy
Other
Nothing
17%
10%
8%
8%
5%
4%
5%
3%
2%
3%
65%
AFFORDABILITY OF CANCER CARE
Caregivers Report Taking the Most Action to Help Pay for Cancer Care
Of those who have taken a step to help pay for care, those who have/had cancer and family members/loved ones report taking an average of
about 2 steps
(B)
Steps Taken to Help Pay for Cancer Care
Among those touched by cancer
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBERS HAVE HAD CANCER (HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464))
Q23 Which of the following, if any, have you or a/another loved one done to help pay for your/their cancer care?
AB
AB
AB
A
AB
AB
(A)
(C)
AB
AB
BC
C
A
A
AB
Have/Had Cancer
Family Member/
Loved One
Caregiver
58
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5%
5%
5%
6%
7%
8%
9%
9%
11%
14%
17%
18%
30%
37%
40%
38%
39%
42%
56%
49%
44%
42%
36%
31%
The U.S. government should regulate the price of cancer drugs to
help lower their cost.
Medicare should be allowed to directly negotiate prescription drug
prices with drug makers.
The U.S. Food and Drug Administration should speed up
approvals of generic versions of cancer treatments.
It should be legal for U.S. residents to buy cancer drugs from
pharmacies in other countries, but only if their safety and
effectiveness can be guaranteed by the FDA.
It should be legal for U.S. residents to buy cancer drugs from
pharmacies in other countries.
The U.S. government should regulate the price of cancer drugs to
help lower their cost, but only if it doesn’t impact pharmaceutical
companies’ investment in the development of new treatments.
Agreement with Statements About Government Action on Cancer Drugs
Strongly disagree Somewhat disagree Somewhat agree Strongly agree
AFFORDABILITY OF CANCER CARE
Nearly 9 in 10 Say Gov’t Should Regulate Price of Cancer Drugs to Lower Cost
A similar proportion believe Medicare should be allowed to directly negotiate drug prices with drug makers
BASE: QUALIFIED RESPONDENTS (n=4012; HAVE/HAD CANCER (n=1142))
Q815 How much do you agree or disagree with the following statements regarding the U.S. government’s action to make cancer drugs more affordable?
Q817 Now, please indicate how much you agree or disagree with these statements regarding the U.S. government’s action to make cancer drugs more affordable.
Total
Agree
(NET)
87%
86%
84%
80%
76%
74%
Have/Had
Cancer
Agree
(NET)
89%
95%
88%
85%
76%
78%
White patients more likely than Black
patients to agree with all statements
except the two related to government
regulation of the price of cancer drugs
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59
Cancer Management
60
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55%
36%
45%
40%
34%
34%
41%
33%
30%
20%
66%
57%
54%
41%
40%
40%
38%
35%
26%
20%
Prescribes/prescribed the right treatment
Is/was up front and straightforward about my chances of
survival
Takes/took the time to listen to me
Shows/showed compassion for what I am/was going through
Helps/helped me avoid unnecessary tests or treatments
Understands my personal goals (i.e., longer life, best quality of
life, family considerations, financial concerns, etc.)
Helps/helped me manage my pain
Helps/helped me manage my anxiety or fears
Discusses/discussed the cost of treatment options
Is/was available during non-standard work hours
64%
44%
50%
46%
36%
38%
50%
37%
29%
19%
(A)
CANCER MANAGEMENT
Doctor Being Up Front About Survival Chances Second Only to Prescribing Right Treatment
Patients more likely to say being up front/straightforward about survival is essential. Caregivers more likely to say managing pain is essential
BASE: HAVE HAD CANCER (n=1142)
Q20 In regard to cancer care, how important is/was it to you that your doctor…
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464)
Q20B In regard to cancer care, how important is/was it that your immediately family member or loved one’s/ the person you provide care for’s doctor…
Importance that Doctor Does the Following
(% Absolutely Essential)
Among those touched by cancer
(B) (C)
BC
B
AB
B
Have/Had Cancer
Family Member/
Loved One
Caregiver
B
61
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80%
73%
73%
35%
68%
67%
I support the use of medical marijuana among cancer patients
I support the use of medical marijuana for any medical reason
Alternative therapies are a good supplement to standard cancer
treatment(s)
Cancer can be cured solely through alternative therapies, without
standard cancer treatment(s)
Any new rules and regulations that would make prescription opioids
harder to obtain should not be applicable to cancer patients
The benefits of using prescription opioids to manage cancer pain
outweigh the risks of potentially becoming addicted
CANCER MANAGEMENT
Majorities Support Medical Marijuana, Especially for Cancer
More than 1 in 3 Americans still believe cancer can be cured solely through alternative therapies
BASE: QUALIFIED RESPONDENTS (n=4012)
Q4 To what extent do you agree with the following statements?
Agreement with Statements About Cancer Care
(% Strongly/Somewhat agree)
Medical
Marijuana
Prescription
Opioids
Alternative
Treatments
62
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CANCER MANAGEMENT
Fewer Adults Support the Use of Medical Marijuana for Cancer Patients
BASE: QUALIFIED RESPONDENTS (2018; n=4038, 2019; n=4001, 2020; n=4012)
Q4 To what extent do you agree with the following statements?
Trended Agreement with Statements About Cancer Care
(% Strongly/Somewhat Agree)
2018
(B)
2019
(C)
2020
(D)
I support the use of medical marijuana among cancer patients.
83% D 84% D 80%
I support the use of medical marijuana for any medical reason.
76% 76% 73%
Alternative therapies are a good supplement to standard cancer treatment(s).
75% 73% 73%
Any new rules and regulations that would make prescription opioids harder to
obtain should not be applicable to cancer patients.
73% D 70% 68%
The benefits of using prescription opioids to manage cancer pain outweigh the
risks of potentially becoming addicted.
69% 66% 67%
Cancer can be cured solely through alternative therapies, without standard
cancer treatment(s).
39% CD 34% 35%
While still more than a third, compared to 2018 fewer believe cancer can be cured solely through alternative therapies
63
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79%
69%
56%
49%
65%
17%
66%
61%
I support the use of medical marijuana among cancer patients
I support the use of medical marijuana for any medical reason
I am/was open to using medical marijuana to alleviate my
cancer-related pain, nausea, or other symptoms
I wish I had more information about the benefits of using
medical marijuana to alleviate my cancer-related pain, nausea,
or other symptoms
Alternative therapies are a good supplement to standard cancer
treatment(s)
Cancer can be cured solely through alternative therapies,
without standard cancer treatment(s)
Any new rules and regulations that would make prescription
opioids harder to obtain should not be applicable to cancer
patients
The benefits of using prescription opioids to manage cancer
pain outweigh the risks of potentially becoming addicted
79%
71%
72%
38%
67%
66%
ABC
A
85%
79%
71%
25%
73%
74%
83%
79%
76%
31%
73%
68%
CANCER MANAGEMENT
Regardless of Experience, 8 in 10 Support Medical Marijuana for Cancer
Those with no cancer experience are most likely to believe cancer can be cured solely through alternative therapies without standard cancer
treatments
BASE: QUALIFIED RESPONDENTS (HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464), NO EXPERIENCE (n=2847))
Q4 To what extent do you agree with the following statements?
(A) (B) (C)
Agreement with Statements About Cancer Care
(% Strongly/Somewhat agree)
Only asked among those who have/had cancer
(D)
AD
Medical
Marijuana
Prescription
Opioids
Alternative
Treatments
A
AD
AD
AD
A
A
AD
AD
A
A
Have/Had Cancer
Family Member/
Loved One
Caregiver
No Experience
64
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CANCER MANAGEMENT
Fewer Patients Open to Medical Marijuana to Alleviate Cancer-Related
Pain/Nausea/Symptoms, Wish They Had More Information on the Benefits of
Medical Marijuana
BASE: HAVE/HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142)
Q4 To what extent do you agree with the following statements?
Trended Agreement with Statements About Cancer Care
(% Strongly/Somewhat Agree)
Among those who have/had cancer
2018
(B)
2019
(C)
2020
(D)
I am/was open to using medical marijuana to alleviate my cancer-
related pain,
nausea, or other symptoms.
62% D 62% D 56%
I wish I had more information about the benefits of using medical marijuana to
alleviate my cancer-
related pain, nausea, or other symptoms.
58% D 60% D 49%
65
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79%
69%
56%
49%
65%
17%
66%
61%
I support the use of medical marijuana among cancer patients
I support the use of medical marijuana for any medical reason
I am/was open to using medical marijuana to alleviate my cancer-related
pain, nausea, or other symptoms
I wish I had more information about the benefits of using medical marijuana
to alleviate my cancer-related pain, nausea, or other symptoms
Alternative therapies are a good supplement to standard cancer treatment(s)
Cancer can be cured solely through alternative therapies, without standard
cancer treatment(s)
Any new rules and regulations that would make prescription opioids harder to
obtain should not be applicable to cancer patients
The benefits of using prescription opioids to manage cancer pain outweigh
the risks of potentially becoming addicted
CANCER MANAGEMENT
Black Cancer Patients More Likely Than White Patients To Believe Cancer Can
Be Cured Solely Through Alternative Therapies
White Cancer patients more likely than Black patients to support use of medical marijuana for any reason, and to agree with statements
related to prescription opioid access and use
BASE: QUALIFIED RESPONDENTS (HAVE/HAD CANCER (n=1142), WHITE PATIENTS (n=900), BLACK PATIENTS (n=125)
Q4 To what extent do you agree with the following statements?
Agreement with Statements About Cancer Care
(% Strongly/Somewhat agree)
Among those who have/had cancer
Medical
Marijuana
Prescription
Opioids
Alternative
Treatments
White Cancer
Patients (A)
Black Cancer
Patients (B)
81% 72%
71%
B
57%
55% 54%
48% 43%
65% 59%
14% 27%
A
66%
B
50%
61%
B
47%
66
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32%
37%
39%
12%
7%
10%
1%
26%
6%
34%
21%
20%
12%
6%
5%
3%
40%
2%
Surgery
Radiation therapy
Drug-based therapies
Hormone therapies
Immunotherapy
Complementary and alternative therapies
Other
No cancer treatments in the past 12 months
Not sure
30%
28%
26%
7%
4%
6%
5%
28%
10%
CANCER MANAGEMENT
Surgery, Radiation, Drug-based Therapies Are Most Common Treatments
Caregivers and family members/loved ones are more likely to say their loved ones used these therapies in the last 12 months, compared to
those who have/had cancer themselves
(A)
(B)
(C)
Treatments Used in Last 12 Months
Among those touched by cancer
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBERS HAVE HAD CANCER (HAVE/HAD CANCER (n=1142), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464)
Q14 Which of the following therapies, if any, have you/they used to treat (i.e., attempt to cure) your/their cancer in the past 12 months? Please select all that apply.
A
A
AB
AB
B
B
A
A
C
BC
A
Have/Had Cancer
Family Member/
Loved One
Caregiver
67
Harris Insights & Analytics LLC, A Stagwell Company
CANCER MANAGEMENT
Just Over One-Quarter Who Have/Had Cancer Discussed OTC Pain Relievers
with Doctor
1 in 5 discussed prescription opioids and less than 1 in 10 discussed medical marijuana or CBD products
27%
19%
14%
10%
9%
9%
8%
6%
6%
4%
51%
Over the counter pain relievers
Prescription opioids
Vitamins/minerals/herbs
Physical therapy or massage
Antidepressants
Meditation
Steroids
Medical marijuana
CBD products
Acupuncture
None of these
BASE: HAVE HAD CANCER (n=1142)
Q3 Which of the following methods, if any, has the doctor who is/was managing your cancer care ever talked with you about using to alleviate cancer-related pain, nausea, or other symptoms? Please select all that apply.
Topics Ever Discussed with Doctor About Symptom Management
Among those who have/had cancer
68
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23%
23%
26%
12%
11%
14%
13%
12%
11%
3%
4%
31%
10%
17%
15%
9%
7%
7%
6%
6%
6%
5%
2%
5%
59%
4%
Over the counter pain relievers
Vitamins/minerals/herbs
Prescription opioids
Antidepressants
Meditation
Medical marijuana
Physical therapy or massage
CBD products
Steroids
Acupuncture
Other
I/They have not used anything in the past 12 months
Not sure
14%
14%
11%
5%
8%
7%
7%
5%
6%
3%
4%
36%
24%
CANCER MANAGEMENT
Caregivers Most Likely to Report Loved Ones Using Pain Management in Past Year
Caregivers nearly twice as likely as those who have/had cancer and family member/loved ones to say the person they care for used CBD
products in the past year to manage cancer symptoms
(A) (B) (C)
Methods Used in Last 12 Months
to Manage Symptoms
Among those touched by cancer
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBERS HAVE HAD CANCER (HAVE/HAD CANCER (n=1142), ACTIVE CANCER (n=148), FAMILY MEMBER/LOVED ONE (n=539), CAREGIVER (n=464))
Q2 Which of the following methods, if any, have you/they used in the past 12 months to help manage your/their cancer-related pain, nausea, or other symptoms?
Active
Cancer
25%
26%
22%
9%
13%
12%
13%
8%
7%
5%
5%
32%
2%
AB
AB
AB
AB
AB
AB
BC
AC
AB
A
Have/Had Cancer
Family Member/
Loved One
Caregiver
A
69
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42%
58%
Yes No
CANCER MANAGEMENT
Majority Say Marijuana Manages Symptoms Well, But Many Have Difficulty Accessing
*
Fewer who use prescription opioids say they had difficulty accessing them
BASE: HAVE HAD CANCER AND USING OPIOIDS (n=104) OR MEDICAL MARIJUANA (n=58*)
Q5 You indicated that you have used the method(s) below to manage your cancer-related pain, nausea, or other symptoms in the past 12 months. Have you ever had difficulty accessing them?
BASE: HAVE HAD CANCER AND USING MEDICAL MARIJUANA (n=58*)
Q6 How well are your symptoms being managed by medical marijuana?
Ever Had Difficulty Accessing Prescription
Opioids and Medical Marijuana
60%
40%
Yes No
Among those using
prescription opioids
Among those using
medical marijuana*
How Well Medical Marijuana
Manages Symptoms
Among those using medical marijuana*
3%
9%
41%
48%
Very well
Somewhat well
Not very well
Not at all well
* Caution, small base size (n <100). Results should be interpreted as directional
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70
Demographics
71
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31%
23%
25%
21%
18-34
35-49
50-64
65+
62% White
16% Hispanic
12% Black/African American
6% Asian or Pacific Islander
2% Mixed race
1% Native American
* Other race
2% Prefer not to answer
DEMOGRAPHICS – GENERAL POPULATION
Age
Race
Gender
47%
male
53%
female
Region
Locale
Children in HH
33%
Urban
46%
Suburban
21%
Rural
0 kids
1 to 2 kids
3+ kids
6%
61%
34%
24%
West
21%
Northeast
35%
South
21%
Midwest
BASE: QUALIFIED RESPONDENTS (n=4012)
Demographics
12%
83%
LGBTQ Not LGBTQ
LGBTQ
Mean: 46.5
5% prefer not to answer
72
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9%
57%
34%
Less than high school
High school to less than 4 year
degree
4 year college degree or more
7% Less than $15,000
7% $15,000 to $24,999
7% $25,000 to $34,999
11% $35,000 to $49,999
16% $50,000 to $74,999
13% $75,000 to $99,999
34% $100,000 +
5% Prefer not to Answer
DEMOGRAPHICS – GENERAL POPULATION
Education
Household Income
76%
absolutely
certain
BASE: QUALIFIED RESPONDENTS (n=4012)
Demographics
Marital Status
29% Never married
53% Married/Living with Partner
11% Divorced
2% Separated
5% Widow/Widower
41% Employed full time
10% Employed part time
5% Self-employed full time
4% Self-employed part time
6% Not employed, but looking for work
2% Not employed, and not looking for work
4% Not employed, unable to work due to disability or illness
19% Retired
4% Student
5% Stay at home spouse/partner
Employment
Adults in HH
1
17%
21%
49%
9%
4%
2
3
4
5+
35%
32%
25%
8%
Political Party
RepublicanDemocrat Independent
Other
73
Harris Insights & Analytics LLC, A Stagwell Company
3%
12%
27%
58%
18-34
35-49
50-64
65+
79% White
7% Black/African American
6% Hispanic
3% Asian or Pacific Islander
2% Mixed race
2% Other race
1% Native American
1% Prefer not to answer
DEMOGRAPHICS – HAVE/HAD CANCER
Age
Race
Gender
42%
male
58%
female
Region
Locale
Children in HH
22%
Urban
51%
Suburban
28%
Rural
0 kids
1 to 2 kids
3+ kids
1%
85%
14%
20%
West
22%
Northeast
34%
South
23%
Midwest
BASE: HAVE/HAD CANCER (n=1142)
Demographics
6%
92%
LGBTQ Not LGBTQ
LGBTQ
2% prefer not to answer
74
Harris Insights & Analytics LLC, A Stagwell Company
4%
57%
38%
Less than HS
High school to less than 4 year
degree
4 year college degree or more
6% Less than $15,000
9% $15,000 to $24,999
10% $25,000 to $34,999
11% $35,000 to $49,999
17% $50,000 to $74,999
13% $75,000 to $99,999
28% $100,000 +
6% Prefer not to Answer
DEMOGRAPHICS – HAVE/HAD CANCER
Education
Household Income
76%
absolutely
certain
BASE: HAVE/HAD CANCER (n=1142)
Demographics
Marital Status
7% Never married
64% Married/Living with Partner
15% Divorced
2% Separated
12% Widow/Widower
Employment
Adults in HH
1
12%
27%
57%
4%
1%
2
3
4
5+
38%
35%
23%
4%
Political Party
22% Employed full time
9% Employed part time
2% Self-employed full time
3% Self-employed part time
4% Not employed, but looking for work
1% Not employed, and not looking for work
7% Not employed, unable to work due to disability or illness
50% Retired
* Student
2% Stay at home spouse/partner
Republican
Democrat Independent
Other
Harris Insights & Analytics LLC, A Stagwell Company
75
Cancer Profiles
76
Harris Insights & Analytics LLC, A Stagwell Company
24%
17%
7%
6%
5%
5%
4%
4%
4%
3%
3%
2%
1%
1%
1%
14%
Breast
Prostate
Melanoma
Uterine/Ovarian
Lung
Colorectal
Non-Hodgkin Lymphoma
Bladder
Thyroid
Leukemia
Kidney
Liver
Pancreatic
Stomach
Esophagus
Other
12%
In the past year
12%
1 - less than 2 years ago
31%
2-5 years ago
18%
6-10 years
25%
More than 10 years ago
*
Prefer not to answer
2%
Not sure
PROFILE – HAVE/HAD CANCER
Cancer Type
Time of Diagnosis
Metastatic Cancer Experience
Current Cancer Status
Active
Partial Remission
Complete Remission
73%
13%
14%
BASE: HAVE/HAD CANCER (n=1142)
Q765, Q900, Q10, Q12
14%
82%
4%
Yes No Not sure
77
Harris Insights & Analytics LLC, A Stagwell Company
21%
12%
9%
7%
7%
5%
4%
4%
4%
4%
4%
4%
3%
3%
1%
9%
Breast
Lung
Prostate
Uterine/Ovarian
Colorectal
Leukemia
Kidney
Melanoma
Pancreatic
Esophagus
Liver
Stomach
Thyroid
Non-Hodgkin Lymphoma
Bladder
Other
8%
In the past year
13%
1 - less than 2 years ago
23%
2-5 years ago
19%
6-10 years
33%
More than 10 years ago
2%
Prefer not to answer
3%
Not sure
PROFILE –FAMILY MEMBER/LOVED ONE
Cancer Type
Time of Diagnosis
Current Cancer Status
Active
Partial Remission
Complete Remission
32%
8%
12%
BASE: FAMILY/LOVED ONE HAS CANCER (n=539)
Q765, Q901, Q12
Person is Deceased
48%
78
Harris Insights & Analytics LLC, A Stagwell Company
10%
In the past year
12%
1 - less than 2 years ago
31%
2-5 years ago
19%
6-10 years
26%
More than 10 years ago
1%
Prefer not to answer
1%
Not sure
PROFILE – CAREGIVER
Cancer Type
Time of Diagnosis
Current Cancer Status
Active
Partial Remission
Complete Remission
28%
14%
12%
BASE: CAREGIVER (n=464)
Q765, Q901, Q12
Person is Deceased
46%
21%
12%
12%
6%
5%
5%
5%
5%
4%
3%
3%
3%
3%
3%
2%
9%
Breast
Lung
Prostate
Uterine/Ovarian
Colorectal
Leukemia
Kidney
Melanoma
Non-Hodgkin Lymphoma
Esophagus
Pancreatic
Thyroid
Stomach
Bladder
Liver
Other
Harris Insights & Analytics LLC, A Stagwell Company
79
Health Insurance Profiles
80
Harris Insights & Analytics LLC, A Stagwell Company
43%
33%
10%
5%
4%
4%
Private insurance/Payer
Public insurance
Uninsured
Private insurance/Public payer
Healthcare.gov/State based
exchange
Other/Not sure
Type of Health Insurance
HEALTH INSURANCE PROFILES
More than 2 in 5 Adults Have Private Insurance
More than 4 in 5 adults who have health insurance say prescription drugs are covered
BASE: QUALIFIED RESPONDENTS (n=4012)
Q940 Which of the following best describes how you receive health insurance benefits today? Please select all that apply.
BASE: HAS HEALTH INSURANCE (n=3542)
Q942 Does your health insurance include prescription drug coverage?
BASE: HAS MEDICARE (n=884)
Q943 Have you ever purchased a supplemental Medigap policy to help with your Medicare coverage?
83%
11%
6%
Yes No Not sure
Prescription Drugs Covered by Insurance
Among those who have health insurance
Ever Purchased Supplemental Medigap Policy
Among those who have Medicare
42%
52%
6%
Yes No Not sure
81
Harris Insights & Analytics LLC, A Stagwell Company
58%
28%
9%
2%
2%
1%
Public insurance
Private insurance/Payer
Private
insurance/Public payer
Uninsured
Healthcare.gov/State
based exchange
Other/Not sure
Type of Health Insurance
HEALTH INSURANCE PROFILES
Majority of Those Who Have/Had Cancer Have Public Insurance
Nearly nine in ten with health insurance say prescription drugs are covered
BASE: HAVE/HAD CANCER (n=1142)
Q940 Which of the following best describes how you receive health insurance benefits today? Please select all that apply.
BASE: HAVE/HAD CANCER AND HAS HEALTH INSURANCE (n=1120)
Q942 Does your health insurance include prescription drug coverage?
BASE: HAVE/HAD CANCER AND HAS MEDICARE (n=767)
Q943 Have you ever purchased a supplemental Medigap policy to help with your Medicare coverage?
87%
12%
1%
Yes No Not sure
Prescription Drugs Covered by Insurance
Among those who have/had cancer and have health insurance
Ever Purchased Supplemental Medigap Policy
Among those who have/had cancer and have Medicare
49%
46%
6%
Yes No Not sure
Harris Insights & Analytics LLC, A Stagwell Company
82
Appendix
83
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – ATTITUDES ABOUT CANCER RISK
Adults Self-Reporting Cancer Diagnosis on Par With 2019
BASE: QUALIFIED RESPONDENTS (2017; n=4016, 2018; n=4038, 2019; n=4001, 2020; n=4012)
Q601 How concerned are you that you may develop the following diseases in your lifetime?
Trended Disease Diagnoses
(% Already Diagnosed)
2017
(A)
2018
(B)
2019
(C)
2020
(D)
High blood pressure 19% 18% 21%
B 20%
Arthritis 13% 12% 16%
ABD 13%
Diabetes 8% 8% 11%
AB 11% AB
Cancer 4% 3% 5% B 5% B
Heart attack or heart disease 3% 3% 4% A 3%
Stroke 1% 2%
A 2% A 2% A
Alzheimer’s disease * 1% 1% 1%
84
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – ATTITUDES ABOUT CANCER RISK
This Year, Adults Reporting an Immediate Family Member/Loved One Has Been
Diagnosed with Cancer Has Returned to 2018 Level
BASE: QUALIFIED RESPONDENTS (2017; n=4016, 2018; n=4038, 2019; n=4001, 2020; n=4012)
Q615 Has a doctor, nurse, or other health professional ever told an immediate family member (child, parent, sibling) or loved one that they have any of the following? Please select all that apply.
Trended Disease Diagnoses for Immediate Family Member
2017
(A)
2018
(B)
2019
(C)
2020
(D)
High blood pressure
51% 48% 53% B 50%
Diabetes
34% 33% 36% 39% ABC
Arthritis
32% B 27% 31% B 29%
Cancer
32% BD 28% 32% BD 28%
Heart attack or heart disease
24% B 20% 24% B 22%
Stroke
15% 15% 16% 14%
Alzheimer’s disease
11% 10% 9% 10%
None of these
26% 29% AD 27% 25%
85
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – ATTITUDES ABOUT CANCER RISK
Fewer Adults Report Being Unsure What Most Cancers Are Caused By
BASE: QUALIFIED RESPONDENTS (2017; n=4016, 2018; n=4038, 2019; n=4001, 2020; n=4012)
Q700 Which of the following do you think most cancers are caused by?
Trended Beliefs About Causes of Cancer
2017
(A)
2018
(B)
2019
(C)
2020
(D)
Lifestyle choices (e.g., smoking, sun exposure, diet) 32% 33% 33% 34%
Family history (i.e., hereditary factors) 27%
C 25% 24% 28% BC
Random mutations in a person’s genes 14% 13% 13% 13%
Environmental causes (e.g., pollutants) 10% 12%
AD 12% AD 10%
Other 2% 2% 2% 2%
Not sure 16%
D 15% D 15% D 13%
Belief that cancer is caused by family history and environmental causes return towards 2017 levels
86
Harris Insights & Analytics LLC, A Stagwell Company
2018
(B)
2019
(C)
2020
(D)
Not smoke or use tobacco products
62% 63% 62%
Eat lots of fruits and vegetables
52% 51% 52%
Take vitamins or supplements
44% 44% 50% BC
Use sunblock
48% 49% 48%
Maintain a healthy weight
46% 45% 47%
Limit skin’s exposure to the sun without sunblock
49% 49% 47%
Limit alcohol consumption
41% 40% 42%
Avoid using artificial sweeteners
34% D 34% 31%
Avoid eating processed meats
30% D 29% D 27%
Limit caffeine intake
21% 22% 22%
Limit cell phone usage
16% 18% D 15%
Other
3% D 2% D 1%
I am not doing anything to reduce my risk of cancer
12% 13% 11%
APPENDIX – ATTITUDES ABOUT CANCER RISK
Increase in Vitamin/Supplement Use to Reduce Cancer Risk This Year
BASE: QUALIFIED RESPONDENTS (2018; n=4038, 2019; n=4001, 2020; n=4012)
Q715 Which of the following describes what you currently do to reduce your risk of getting cancer [again or getting another type of cancer]? Please select all that apply.
Trended Cancer Risk Reduction Behaviors Practiced
Decrease possibly related to COVID-19 pandemic and increased focus on health in general (e.g., supplements to support immune system)
87
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – ATTITUDES ABOUT CANCER RISK
Increase in Adults Incorporating Cancer Prevention Into Their Daily Life
BASE: QUALIFIED RESPONDENTS (2019; n=4001, 2020; n=4012)
Q716 [Prior to being diagnosed with cancer] Which of the following best describes how you think [thought] about your cancer risk?
Trended Cancer Risk Perspective
2019
(C)
2020
(D)
I care deeply and incorporate cancer prevention into my daily life.
[I cared deeply and incorporated cancer prevention into my daily life.]
24% 27% C
My concern comes and goes. Some days I worry more than others.
[My concern came and went. Some days I worried more than others.]
51% 50%
If I am going to get cancer, I am going to get it. There is nothing I can do.
[If I was going to get cancer, I was going to get it. There was nothing I could do.]
25% 23%
88
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – ATTITUDES ABOUT CANCER RISK
Increase in Proportions Who Have Talked to a Doctor About Ways to Reduce
Cancer Risk, Thought They Had Cancer Based Only on Online Information
BASE: QUALIFIED RESPONDENTS (2019; n=4001, 2020; n=4012)
Q717 Which of the following, if any, have you ever done? Please select all that apply.
Trended Action Taken Regarding Cancer Risk
2019
(C)
2020
(D)
Searched online for what to do to reduce my cancer risk 24% 26%
Talked to a doctor about my cancer risk 22% 22%
Talked to a doctor about what I should do to reduce my cancer risk 18% 22%
C
Thought I had cancer based solely on information I had found online (rather
than being diagnosed by a doctor)
9% 12% C
None of these
53% D 49%
89
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – ATTITUDES ABOUT CANCER RISK
Concerns About Negative Impact on Work/Professional Opportunities and
Being Treated Differently by Others Has Increased Compared to Previous Years
BASE: QUALIFIED RESPONDENTS (2017; n=4016, 2018; n=4038, 2019; n=4001, 2020; n=4012)
Q770 What are/were your greatest concerns about being diagnosed with cancer? Please select all that apply.
Trended Greatest Concerns About Being Diagnosed with Cancer
2017
(A)
2018
(B)
2019
(C)
2020
(D)
FINANCIAL FEARS (NET)
60% 57% 60% B 60%
Financial impact on my family
48% 45% 48% 49% B
Paying for treatment
46% 44% 46% 43%
Dying from cancer
56% 54% 58% B 59% B
Suffering/pain
58% B 54% 59% B 57%
Loss of control over my life
50% 48% 53% B 53% AB
Side effects of the treatment
52% 49% 53% B 52%
Being a physical or emotional burden on my family or friends
52% B 48% 53% B 52% B
Long-
term complications (e.g., urinary incontinence, impotence)
39% 37% 42% B 40% B
Negative impact on work/professional opportunities
18% 17% 19% 22% ABC
Not knowing what caused it
15% 16% 19% AB 20% AB
Being treated differently by family, friends, co-
workers, and
acquaintances
15% 15% 17% 19% ABC
Something else
3% 3% 3% 3%
I do not have any concerns about being diagnosed with cancer
7% 11% AD 11% A 9% A
90
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - ACCESS TO BEST POSSIBLE CARE
Fewer Adults Agree They Are Uncertain About How the Future of the Healthcare
System Will Impact Their Ability to Get the Best Possible Care
BASE: QUALIFIED RESPONDENTS (2018; n=4038, 2019; n=4001, 2020; n=4012)
Q65 How much do you agree or disagree with the following statement about the U.S. healthcare system? I am uncertain about how the future of the healthcare system will impact my ability to get the best possible care.
Trended Agreement with Statement About Future of Healthcare
(% Strongly/Somewhat Agree)
2018
(B)
2019
(C)
2020
(D)
I am uncertain about how the future of the healthcare system
will impact my ability to get the best possible care.
77%
D 78% D 71%
91
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - ACCESS TO BEST POSSIBLE CARE
Compared to 2019, Those Who Have/Had Cancer Are More Likely This Year to
Say They Are Satisfied with the Quality of Doctors Near Them and That They
Received the Best Possible Cancer Care
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBER (HAVE/HAD CANCER (n=2018; n=1001, 2019; n=1009, 2020; n=1142)
Q920 How much do you agree or disagree with each of the following statements?
Trended Agreement with Statements About Cancer Care
(% Strongly/Somewhat Agree)
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
I am/was satisfied with the quality of the doctors who specialize in cancer care near
where I live.
88% 86% 90% C
I am receiving/received the best possible cancer care.
89% 88% 91% C
I am uncertain about how the future of the healthcare system will impact my ability to
get the best possible cancer care.
72% D 73% D 57%
If the location where I receive/received cancer care closed, I wouldn’t know where else
to go.
32% 37% B 32%
I have/had to travel too far to see the doctor who is/was managing my cancer care.
23% 26% 21%
There aren’t/weren’t enough doctors who specialize in cancer care near where I live.
26% 29% D 24%
92
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - ACCESS TO BEST POSSIBLE CARE
Compared to 2019, Family Members/Loved Ones Are Less Likely to Say They
Are Uncertain About How the Future of Healthcare Will Impact Their Family
Member/Loved One’s Ability to Get the Best Possible Cancer Care
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (FAMILY MEMBER/LOVED ONE n=2018; n=593, 2019; n=668, 2020; n=539)
Q920 How much do you agree or disagree with each of the following statements?
Trended Agreement with Statements About Cancer Care
(% Strongly/Somewhat Agree)
2018
(B)
2019
(C)
2020
(D)
I am/was satisfied with the quality of the doctors who specialize in cancer care near
where my immediate family member or loved one lives.
72% 75% 75%
My immediate family member or loved one is receiving/received the best possible
cancer care.
68% 77% B 71%
I am uncertain about how the future of the healthcare system will impact my family
member or loved one’s ability to get the best possible cancer care.
68% 70% D 62%
If the location where my immediate family member or loved one receives/received
cancer care closed, they wouldn’t know where else to go.
37% 38% 38%
My immediate family member or loved one has/had to travel too far to see the
doctor who is/was managing their cancer care.
33% 29% 30%
There aren’t/weren’t enough doctors who specialize in cancer care near where my
immediate family member or loved one lives.
39% D 35% 30%
Family Member/Loved One
93
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - ACCESS TO BEST POSSIBLE CARE
Caregivers Beliefs About Cancer Care Unchanged Compared to Previous Years
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (CAREGIVER 2018; n=402, 2019; n=496, 2020; n=464)
Q920 How much do you agree or disagree with each of the following statements?
Trended Agreement with Statements About Cancer Care
(% Strongly/Somewhat Agree)
2018
(B)
2019
(C)
2020
(D)
I am/was satisfied with the quality of the doctors who specialize in cancer care near where
the person I care for lives.
75% 77% 78%
The person I care for has received the best possible cancer care.
67% 80% B 77% B
I am uncertain about how the future of the healthcare system will impact the person for
whom I provide care’s ability to get the best possible cancer care.
72% 71% 67%
If the location where the person I care for receives/received cancer care closed, they
wouldn’t know where else to go.
54% 50% 46%
The person I care for has/had to travel too far to see the doctor who is/was managing their
cancer care.
42% 38% 38%
There aren’t/weren’t enough doctors who specialize in cancer care near where the person
I care for lives.
43% 39% 35%
Caregiver
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Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - ACCESS TO BEST POSSIBLE CARE
Increase in Insured Patients Reporting Their Insurance Was Not a Barrier To
Obtaining the Best Possible Cancer Care
BASE: HAVE HAD CANCER AND HAVE HEALTH INSURANCE (2018, n=948; 2019, n=970, 2020; n=1120)
Q40 In your opinion and experience, which of the following aspects of your health insurance coverage, if any, make/made it difficult for you to obtain the best possible cancer care? Please select all that apply.
Trended Aspects of Health Insurance That Make It Difficult to Obtain Best Possible Care
Among those who have/had cancer and have health insurance
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Insurance premiums (the payment (usually monthly) you make to your health insurance
company that keeps your coverage active)
13% 13% 11%
Deductibles (the amount you pay for covered health care services before your insurance
plan starts to pay)
21% D 18% D 14%
Pre-
authorization requirements (a decision by your health insurance company that a
health care service, treatment plan, prescription drug, etc. is medically necessary for you
to have)
16% 19% D 14%
Co-
pays (fixed amount you pay each time a health care service is accessed)
18% D 20% D 13%
Coinsurance (the percentage of costs of a covered health care service you pay after
you've paid your deductible)
12% 12% 11%
Lack of/inadequate prescription drug coverage
10% D 9% D 5%
Other
3% 2% 2%
No aspects of my health insurance have made it difficult to obtain the best possible
cancer care
57% 56% 66% BC
95
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Financial Anxiety Resulting From Cancer Diagnosis Has Declined
Trended Amount of Anxiety Felt Regarding Financial Situation as a Result of Cancer Diagnosis
(% A little/A lot/An Overwhelming Amount of Anxiety)
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBERS HAVE HAD CANCER (HAVE/HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142) FAMILY MEMBER/LOVED ONE (2018; n=593, 2019; n=668, 2020; n=539)
CAREGIVER (2018; n=402, 2019; n=496, 2020; n=464)
Q22 How much anxiety do/did you feel specifically regarding your financial situation as a result of your/their cancer diagnosis?
Have/Had Cancer Family Member/Loved One Caregiver
2018
(B)
2019
(C)
2020
(D)
69% D 65% D 59%
2018
(B)
2019
(C)
2020
(D)
43% 36% 39%
2018
(B)
2019
(C)
2020
(D)
69% 65% 62%
96
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Adults Who Have/Had Cancer Are Less Concerned About Treatment
Affordability Compared to Previous Years
Trended Concern About Treatment Affordability
(% Very/Somewhat Concerned)
Among those responsible for paying for treatment
Have/Had Cancer Family Member/Loved One Caregiver
2018
(B)
2019
(C)
2020
(D)
54% D 53% D 44%
2018
(B)
2019
(C)
2020
(D)
55% 54% 54%
2018
(B)
2019
(C)
2020
(D)
74% 74% 67%
BASE: PAYING FOR TREATMENT (HAVE/HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142) FAMILY MEMBER/LOVED ONE (2018; n=285, 2019; n=281, 2020; n=267) CAREGIVER (2018; n=276, 2019; n=339, 2020; n=325)
Q930. Concern about Being Able to Afford Cancer Treatment Among Those Who Pay for Treatment
97
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Proportion Who Have/Had Cancer and Have Done Something to Reduce Their
Cancer Treatment Costs Decreases Beyond 2018 Levels
Trended Actions Taken to Reduce Treatment Costs
Among those touched by cancer
BASE: HAVE HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142)
Q935 Which of the following have you/they done to reduce cancer treatment costs? Please select all that apply.
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Taken at least 1 action (NET)
20% D 26% BD 16%
Skipped or postponed doctor appointments
7% D 8% D 5%
Cut pain/anti-
nausea pills in half
6% 9% BD 4%
Delayed having scan(s) performed to assess my cancer
7% D 7% 5%
Postponed filling or did not fill prescriptions
5% 8% BD 4%
Refused treatment
3% 5% B 3%
Ordered medications from non-
U.S. sources
2% 4% 3%
Skipped doses of prescribed medications
6% 6% D 4%
Cut oral chemotherapy pills in half
2% 4% BD 2%
Other 3% 4% 4%
None –
have not done anything to reduce cancer treatment costs
80% C 74% 84% BC
98
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
The Same Is True When Looking by Insurance Type
Trended Actions Taken to Reduce Treatment Costs
(% Taken at Least 1 Action)
Among those who have/had cancer by insurance type
BASE: HAVE HAD CANCER (PRIVATE/PRIVATE (2018; n=369, 2019; n=328, 2020; n=231), PRIVATE/PUBLIC (2018; n=110, 2019; n=107, 2020; n=126), PUBLIC (2018; n=462, 2019; n=489, 2020; n=724))
Q935 Which of the following have you/they done to reduce cancer treatment costs? Please select all that apply.
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Private insurance/payer
24% 36% BD 24%
Private insurance/public payer
17% 18% 15%
Public insurance
17% C 18% C 12%
99
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Compared to 2018, More Family Members/Loved Ones Say Their Loved One Has
Had to Take Action to Reduce Their Cancer Treatment Costs
Trended Actions Taken to Reduce Treatment Costs
Among those touched by cancer
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (FAMILY MEMBER/LOVED ONE 2018; n=593, 2019; n=668, 2020; n=539)
Q935 Which of the following have you/they done to reduce cancer treatment costs? Please select all that apply.
2018
(B)
2019
(C)
2020
(D)
Taken at least 1 action (NET)
15% 17% 20% B
Skipped or postponed doctor appointments
5% 4% 6%
Cut pain/anti-
nausea pills in half
4% 4% 6%
Delayed having scan(s) performed to assess their cancer
5% 4% 6%
Postponed filling or did not fill prescriptions
3% 4% 4%
Refused treatment
4% 4% 7%
Ordered medications from non-
U.S. sources
2% 2% 4%
Skipped doses of prescribed medications
4% 5% 3%
Cut oral chemotherapy pills in half
3% 1% 4% C
Other 2% 2% 2%
None –
have not done anything to reduce cancer treatment costs
62% D 56% 50%
Not sure
23% 27% 30%
Family Member/Loved One
100
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Actions Taken to Reduce Treatment Costs Reported by Caregivers On Par with
Previous Years
Trended Actions Taken to Reduce Treatment Costs
Among those touched by cancer
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (CAREGIVER 2018; n=402, 2019; n=496, 2020; n=464)
Q935 Which of the following have you/they done to reduce cancer treatment costs? Please select all that apply.
2018
(B)
2019
(C)
2020
(D)
Taken at least 1 action (NET)
40% 37% 34%
Skipped or postponed doctor appointments
12% 14% 13%
Cut pain/anti-
nausea pills in half
13% 11% 11%
Delayed having scan(s) performed to assess their cancer
15% 11% 9%
Postponed filling or did not fill prescriptions
7% 12% 12%
Refused treatment
10% 12% 8%
Ordered medications from non-
U.S. sources
10% 5% 8%
Skipped doses of prescribed medications
13% 12% 9%
Cut oral chemotherapy pills in half
10% 6% 6%
Other 3% 3% 2%
None –
have not done anything to reduce cancer treatment costs
51% 49% 56%
Not sure
9% 14% 10%
Caregiver
101
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Among Those Who Have/Had Cancer and Took Action to Reduce Treatment
Costs, Discussions with Doctors About Those Things Stable in 2020
Trended Discussions with Doctor About Reducing Treatment Costs
BASE: HAVE/HAD CANCER OR IMMEDIATE FAMILY MEMBERS HAVE HAD CANCER (HAVE/HAD CANCER (2018; n=253, 2019; n=302, 2020; n=182)
Q45 Have you talked with your doctor about the things you have done to reduce your cancer treatment costs?
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Yes 39% 51% B 50%
No, but I plan to 26% 23% 17%
No, and I do not plan to 36% 27% 33%
102
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Adults Who Have/Had Cancer Are More Likely This Year Compared to Last to
Have Done Nothing to Help Pay for Their Cancer Care, More in Line with 2018
Trended Steps Taken to Help Pay for Cancer Care
BASE: HAVE HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142)
Q23 Which of the following, if any, have you or a/another loved one done to help pay for your/their cancer care?
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Dipped into savings account(s)
17% 20% D 15%
Worked extra hours
9% 14% BD 9%
Taken an early withdrawal from a retirement account, college education fund, etc.
6% 8% D 5%
Postponed retirement
5% 7% D 4%
Taken on an additional job
6% 5% 4%
Sold family heirlooms
4% 5% 3%
Sold major assets such as a home, car, etc.
3% 6% BD 3%
Taken out a second mortgage or another type of loan
3% 4% 2%
Filed for bankruptcy
4% 5% D 2%
Other 4% 4% 4%
Nothing
69% C 63% 73% C
103
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
This Year, Family Members/Loved Ones Saying They Have Postponed
Retirement to Help Pay for Their Loved One’s Cancer Care Has Increased
Trended Steps Taken to Help Pay for Cancer Care
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (FAMILY MEMBER/LOVED ONE 2018; n=593, 2019; n=668, 2020; n=539)
Q23 Which of the following, if any, have you or a/another loved one done to help pay for your/their cancer care?
2018
(B)
2019
(C)
2020
(D)
Dipped into savings account(s)
16% 13% 17%
Worked extra hours
9% 7% 10%
Taken an early withdrawal from a retirement account, college education fund, etc.
6% 6% 8%
Postponed retirement
4% 3% 8% C
Taken on an additional job
5% 4% 5%
Sold family heirlooms
3% 2% 4%
Sold major assets such as a home, car, etc.
4% 3% 5%
Taken out a second mortgage or another type of loan
3% 2% 3%
Filed for bankruptcy
2% 4% 2%
Other 3% 6% 3%
Nothing
71% 69% 65%
Family Member/Loved One
104
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
Compared to 2018, More Caregivers Report Having Done Nothing to Help Pay
for Their Loved One’s Cancer Care
Trended Steps Taken to Help Pay for Cancer Care
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (CAREGIVER 2018; n=402, 2019; n=496, 2020; n=464)
Q23 Which of the following, if any, have you or a/another loved one done to help pay for your/their cancer care?
2018
(B)
2019
(C)
2020
(D)
Dipped into savings account(s)
35% 28% 29%
Worked extra hours
23% 19% 16%
Taken an early withdrawal from a retirement account, college education fund, etc.
14% 13% 15%
Postponed retirement
14% 12% 11%
Taken on an additional job
13% 10% 12%
Sold family heirlooms
9% 12% 11%
Sold major assets such as a home, car, etc.
11% 11% 9%
Taken out a second mortgage or another type of loan
13% D 10% 7%
Filed for bankruptcy
4% 6% 3%
Other 7%
D 9% D 2%
Nothing
39% 44% 48% B
Caregiver
105
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX - AFFORDABILITY OF CANCER CARE
This Year, Fewer Feel Medicare Should Negotiate Cancer Drug Prices, the FDA
Should Speed Up Approvals of Generic Treatments, and That It Should be Legal
for U.S. Residents to Buy Cancer Drugs from Other Countries
BASE: QUALIFIED RESPONDENTS (2017; n=4016, 2018; n=4038, 2019; n=4001, 2020; n=4012)
Q815 How much do you agree or disagree with the following statements regarding the U.S. government’s action to make cancer drugs more affordable?
Q817 Now, please indicate how much you agree or disagree with these statements regarding the U.S. government’s action to make cancer drugs more affordable.
Trended Agreement with Statements About Government Action on Cancer Drugs
(% Strongly/Somewhat Agree)
2017
(A)
2018
(B)
2019
(C)
2020
(D)
The U.S. government should regulate the price of cancer drugs to help
lower their cost.
86% 86% 86% 87%
Medicare should be allowed to directly negotiate prescription drug
prices with drug makers.
92% BCD 88% D 89% D 86%
The U.S. Food and Drug Administration should speed up approvals of
generic versions of cancer treatments.
89% BCD 84% 87% BD 84%
It should be legal for U.S. residents to buy cancer drugs from
pharmacies in other countries.
80% BD 77% 79% D 76%
It should be legal for U.S. residents to buy cancer drugs from
pharmacies in other countries, but only if their safety and effectiveness
can be guaranteed by the FDA.
N/A
81% 82% 80%
The U.S. government should regulate the price of cancer drugs to help
lower their cost, but only if it doesn’t impact pharmaceutical companies’
investment in the development of new treatments.
N/A
76% 75% 74%
106
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
Compared to 2018, Proportion Who Have/Had Cancer Feeling That Their
Doctor Prescribing the Right Treatment or Discussing Cost of Treatment
Options Is Absolutely Essential Declines
BASE: HAVE HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142)
Q20 In regard to cancer care, how important is/was it to you that your doctor…
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Prescribes/prescribed the right treatment
73% CD 67% 66%
Takes/took the time to listen to me
57% 56% 54%
Is/was up front and straightforward about my chances of survival
57% 57% 57%
Helps/helped me avoid unnecessary tests or treatments
44% 44% 40%
Helps/helped me manage my anxiety or fears
37% 36% 35%
Understands/understood my personal goals (i.e., longer life, best quality of life, family
considerations, financial concerns, etc.)
41% 43% 40%
Helps/helped me manage my pain
42% 41% 38%
Shows/showed compassion for what I am/was going through
45% 44% 41%
Discusses/discussed the cost of treatment options
35% D 30% 26%
Is/was available during non-
standard work hours
22% 20% 20%
Trended Importance that Doctor Does the Following
(% Absolutely Essential)
107
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
Family Members/Loved Ones Are Less Likely to Say Most Doctor Actions Are
Absolutely Essential This Year Compared to Previous Years
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (FAMILY MEMBER/LOVED ONE 2018; n=593, 2019; n=668, 2020; n=539)
Q20B In regard to cancer care, how important is/was it that your immediately family member or loved one’s/ the person you provide care for’s doctor…
2018
(B)
2019
(C)
2020
(D)
Prescribes/prescribed the right treatment
65% D 68% D 55%
Takes/took the time to listen to them 56%
D 53% 45%
Helps/helped them manage their pain
52% D 51% D 41%
Shows/showed compassion for what they are/were going through
53% D 51% D 40%
Is/was up front and straightforward about their chances of survival
49% D 51% D 36%
Understands/understood their personal goals (i.e., longer life, best quality of life, family
considerations, financial concerns, etc.)
43% D 41% D 34%
Helps/helped them manage their anxiety or fears
43% D 45% D 33%
Helps/helped them avoid unnecessary tests or treatments
45% D 44% D 34%
Discusses/discussed the cost of treatment options
40% D 34% 30%
Is/was available during non-
standard work hours
24% 23% 20%
Trended Importance that Doctor Does the Following
(% Absolutely Essential)
Family Member/Loved One
108
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
Caregivers Also Less Likely to Find Some Doctor Actions Absolutely Essential in
2020
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (CAREGIVER 2018; n=402, 2019; n=496, 2020; n=464)
Q20B In regard to cancer care, how important is/was it that your immediately family member or loved one’s/ the person you provide care for’s doctor…
2018
(B)
2019
(C)
2020
(D)
Prescribes/prescribed the right treatment
62% 68% 64%
Takes/took the time to listen to them 56% 60%
D 50%
Helps/helped them manage their pain
54% 55% 50%
Shows/showed compassion for what they are/were going through
55% 55% D 46%
Is/was up front
and straightforward about their chances of survival
48% 51% 44%
Understands/understood their personal goals (i.e., longer life, best quality of life, family
considerations, financial concerns, etc.)
44% 39% 38%
Helps/helped them manage their anxiety or fears
47% 47% D 37%
Helps/helped them avoid unnecessary tests or treatments
49% D 46% D 36%
Discusses/discussed the cost of treatment options
37% 38% 29%
Is/was available during non-
standard work hours
26% 28% D 19%
Trended Importance that Doctor Does the Following
(% Absolutely Essential)
Caregiver
109
Harris Insights & Analytics LLC, A Stagwell Company
Reported Use of Complementary/Alternative or Drug-Based Therapies In
Past 12 Months Among Those Who Have/Had Cancer Declines Back Toward
2018 Level
BASE: HAVE HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142)
Q14 Which of the following therapies, if any, have you/they used to treat (i.e., attempt to cure) your/their cancer in the past 12 months? Please select all that apply.
Have/Had Cancer
Trended Treatments Used in Last 12 Months
2018
(B)
2019
(C)
2020
(D)
Surgery
32% 31% 34%
Radiation therapy
20% 24% 21%
Drug based therapies 19% 24%
B 20%
Hormone therapies 13% 13% 12%
Immunotherapy
5% 8% 6%
Complementary and alternative therapies 6% 8%
D 5%
Other 5% 4% 3%
No cancer treatments in past 12 months 40% 35% 40%
Not sure 2% 3% 2%
APPENDIX – CANCER MANAGEMENT
110
Harris Insights & Analytics LLC, A Stagwell Company
Family Members/Loved Ones Less Likely to Report Loved One Had No
Cancer Treatments in Past 12 Months
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (FAMILY MEMBER/LOVED ONE 2018; n=593, 2019; n=668, 2020; n=539)
Q14 Which of the following therapies, if any, have you/they used to treat (i.e., attempt to cure) your/their cancer in the past 12 months? Please select all that apply.
Family Member/Loved One
Trended Treatments Used in Last 12 Months
2018
(B)
2019
(C)
2020
(D)
Surgery
27% 23% 30% C
Radiation therapy
24% 24% 28%
Drug based therapies
26% 24% 26%
Hormone therapies
4% 4% 7%
Immunotherapy
3% 3% 4%
Complementary and alternative therapies
5% 3% 6% C
Other
7% C 2% 5% C
No cancer treatments in past 12 months
38% D 37% D 28%
Not sure
9% 15% BD 10%
APPENDIX – CANCER MANAGEMENT
111
Harris Insights & Analytics LLC, A Stagwell Company
Treatments Used in Last 12 Months As Reported by Caregivers On Par with
Previous Years
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (CAREGIVER 2018; n=402, 2019; n=496, 2020; n=464)
Q14 Which of the following therapies, if any, have you/they used to treat (i.e., attempt to cure) your/their cancer in the past 12 months? Please select all that apply.
Caregiver
2018
(B)
2019
(C)
2020
(D)
Surgery
34% 39% 32%
Radiation therapy
35% 32% 37%
Drug based therapies
39% 38% 39%
Hormone therapies
14% 12% 12%
Immunotherapy
7% 8% 7%
Complementary and alternative therapies
14% 10% 10%
Other
1% 2% 1%
No cancer treatments in past 12 months
31% 30% 26%
Not sure
2% 3% 6% B
Trended Treatments Used in Last 12 Months
APPENDIX – CANCER MANAGEMENT
112
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
Adults Who Have/Had Cancer Are Less Likely This Year to Say They Have Discussed
Prescription Opioids, Medical Marijuana, or Steroids with Their Doctor
BASE: HAVE HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142)
Q3 Which of the following methods, if any, has the doctor who is/was managing your cancer care ever talked with you about using to alleviate cancer-related pain, nausea, or other symptoms? Please select all that apply.
Trended Topics Ever Discussed with Doctor About Symptom Management^
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Over the counter pain relievers
30% 30% 27%
Prescription opioids
27% D 29% D 19%
Medical marijuana
7% 13% BD 6%
Meditation
7% 11% B 9%
Vitamins/minerals/herbs
15% 17% 14%
Physical therapy or massage
11% 13% 10%
Steroids
8% 11% BD 8%
CBD products
N/A N/A
6%
Antidepressants
10% 12% 9%
Acupuncture
4% 5% 4%
None of these
45% 42% 51% BC
^Note: “CBD Products” added as a response option in 2020
Medical marijuana and steroids decline back toward 2018 levels; decline in medical marijuana could be due to the addition of “CBD products”
in 2020
113
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
Use of OTC Pain Relievers, Opioids, Medical Marijuana, and Antidepressants in
the Past 12 Months Has Decreased Among Adults Who Have/Had Cancer
Trended Methods Used in Last 12 Months to Manage Symptoms^
BASE: HAVE/HAD CANCER (2018; n=1001, 2019; n=1009, 2020; n=1142)
Q2 Which of the following methods, if any, have you/they used in the past 12 months to help manage your/their cancer-related pain, nausea, or other symptoms?
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Over the counter pain relievers
22% D 24% D 17%
Vitamins/minerals/herbs
17% 18% 15%
Prescription opioids
12% 17% BD 9%
Meditation
7% 9% 7%
Physical therapy or massage
6% 8% 6%
Medical marijuana
5% 10% BD 6%
Antidepressants
9% 10% D 7%
CBD products
N/A N/A
6%
Steroids
6% 8% 5%
Acupuncture
2% 3% 2%
Other
3% 2% 5% C
I have not used anything to help manage cancer-
related pain,
nausea, or other symptoms in the past 12 months
55% C 48% 59% C
Not sure
4% 5% 4%
^Note: “CBD Products” added as a response option in 2020
Medical marijuana declines back toward 2018 levels, possibly due to the addition of “CBD products” in 2020
114
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
In Contrast, Family Member/Loved Ones Report Increases in Loved Ones Use of
Methods To Manage Symptoms
Trended Methods Used in Last 12 Months to Manage Symptoms^
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (FAMILY MEMBER/LOVED ONE 2018; n=593, 2019; n=668, 2020; n=539)
Q2 Which of the following methods, if any, have you/they used in the past 12 months to help manage your/their cancer-related pain, nausea, or other symptoms?
2018
(B)
2019
(C)
2020
(D)
Over the counter pain relievers
9% 14% B 14% B
Vitamins/minerals/herbs
8% 6% 14% BC
Prescription opioids
11% 14% 11%
Meditation
4% 3% 8% BC
Physical therapy or massage
3% 3% 7% BC
Medical marijuana
4% 7% 7%
Antidepressants
3% 7% 5%
CBD products
N/A N/A
5%
Steroids
4% 4% 6%
Acupuncture
1% 2% 3%
Other
4% 4%
4%
They have not used anything to help manage cancer-
related pain,
nausea, or other symptoms in the past 12 months
50% D 46% D 36%
Not sure
20% 21% 24%
^Note: “CBD Products” added as a response option in 2020
Family Member/Loved One
Including vitamins, meditation, and physical therapy or massage
115
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
Like Family Member/Loved Ones, Caregivers Report Increases in Loved Ones
Use of Methods To Manage Symptoms
Trended Methods Used in Last 12 Months to Manage Symptoms^
BASE: IMMEDIATE FAMILY MEMBERS HAVE/HAD CANCER (CAREGIVER 2018; n=402, 2019; n=496, 2020; n=464)
Q2 Which of the following methods, if any, have you/they used in the past 12 months to help manage your/their cancer-related pain, nausea, or other symptoms?
2018
(B)
2019
(C)
2020
(D)
Over the counter pain relievers
16% 26% B 23%
Vitamins/minerals/herbs
21% 21% 23%
Prescription opioids
25% 30% 26%
Meditation
11% 12% 11%
Physical therapy or massage
10% 13% 13%
Medical marijuana
8% 13% 14%
Antidepressants
13% 14% 12%
CBD products
N/A N/A
12%
Steroids
8% 15% B 11%
Acupuncture
4% 4% 3%
Other
3% 3% 4%
They have not used anything to help manage cancer-
related pain,
nausea, or other symptoms in the past 12 months
42% D 36% 31%
Not sure
5% 7% 10% B
^Note: “CBD Products” added as a response option in 2020
Caregiver
Including over 1 in 10 who say their loved one used CBD products
116
Harris Insights & Analytics LLC, A Stagwell Company
APPENDIX – CANCER MANAGEMENT
No Change in Ability to Access Opioids or Medical Marijuana Among Those
Who Have/Had Cancer and Use Them
BASE: HAVE HAD CANCER AND USING OPIOIDS (2018; n=157, 2019; n=191, 2020; n=104) OR MEDICAL MARIJUANA (2018; n=73*, 2019; n=118, 2020; n=58*)
Q5 You indicated that you have used the method(s) below to manage your cancer-related pain, nausea, or other symptoms in the past 12 months. Have you ever had difficulty accessing them?
BASE: HAVE HAD CANCER AND USING MEDICAL MARIJUANA (2018; n=73*, 2019; n=118, 2020; n=58*)
Q6 How well are your symptoms being managed by medical marijuana?
Trended How Well Medical Marijuana Manages Symptoms
(% Very/Somewhat Well)
Among those using medical marijuana
Trended Ever Had Difficulty Accessing Prescription Opioids and Medical Marijuana
(% Yes)
Have/Had Cancer
2018
(B)
2019
(C)
2020
(D)
Prescription opioids
40% 37% 42%
Medical marijuana
48%* 56% 60%*
2018
(B)
2019
(C)
2020
(D)
93%* 98% 89%*
* Caution, small base size (n <100). Results should be interpreted as directional and stat testing not shown
